Topic: Finally heard about Avastin

Hello dear ones,

I am on my way in to get  a drain.  I look like I have triplets - that's how big my tummy is. 

This morning the doctor's office called and said the Avastin had finally been approved and would be in next week.  Anthem Blue Cross denied it three times so the doctor finally went through the drug company and compassionate use, and they are going to supply it.  The hope is that this Avastin will control my ascites which is quite bad.  I pray that this works.  I have gone for weeks without chemo getting only the drains so I am weak lots of times.  As Jeff says, take it to the limit one more time so maybe I should.

I also wanted to let those of you who keep getting turned down for something know that your doctor can always call the drug company and request compassionate use. 

My prayers and love to you all,
Sophie

Re: Finally heard about Avastin

OMG, Sophie. Every time I think really hard about you there you are with your smiling face! What good news that is and hope it helps you big time! Good to hear from you and especially good to hear you got the big approval. Much luck and hugs to you.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Finally heard about Avastin

Sophie....I am so happy for you to have received the approval.  And, thanks for putting out the word in re: to compassionate use.  Amongst other reasons, the criteria for approval is based on household income.  ($75 thousand).
Sophie, I am hopeful for you to be feeling tons better following the removal of the fluid.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Finally heard about Avastin

That's great news Sophie and it does my heart good just to see your posting - as you are in my prayers & wonderful wishes are coming your way!

Best to you....
Tess

Re: Finally heard about Avastin

Thank you for the good wishes, Lainy, Marion and Tess. 
The radiologist removed 7.6 liters of ascites, but oh my, I feel so much better for the time being.  I admire how you all post no matter how you are feeling.  When I feel sick, I don't even look at the site.  Shame on me.  It's important to cheer someone else's good news even if I am feeling like a crab.  You are all supportive to all of us all the time, and I feel like I am supportive on my own conditions.  I'm sorry.  You are all so important to me.

Sophie

Re: Finally heard about Avastin

Sophie,

You are our rock star, visit us when you can and sing one of your hits for us and if you're not up to it take it easy and take care of yourself--that is the most important thing! Oh, and kissing that baby!

Patty

Re: Finally heard about Avastin

Sophie

I'm so glad to hear that you're finally going to be able to start on the Avastin...that's very good news!  Know that there are no apologies ever ever needed here.  We all do the very best we can and sometimes that means just getting through the day or the minute.  Taking care of yourself is the most important thing you can do.  It is good news to all of us that you're much more comfortable and you'll be starting the Avastin...I hope you know that is what matters to all of us here!

Sending good thoughts and prayers your way!

Jean

Re: Finally heard about Avastin

Sophie...Lainy, Tess, Patty and Jean said it so well.  There is no obligation to post on this board and certainly not when you don't feel up to it.  It is of  utmost importance for you to tend to your own needs.  I am so glad to hear that you are relieved of some of the discomfort.  Hearing from you is a bonus but, oh so welcome.
Sending tons of good wishes your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Finally heard about Avastin

Sophie,
I am so happy for you. You were so much in my thoughts and prayers recently. I was worried when I had seen anything from you recently. I am sending you the best vibes for the Avastin. You are a star.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Finally heard about Avastin

Sophie,

I am so glad to hear that you are feeling a bit better and hope that it keeps working for you.  Kepp in touch when you can.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Finally heard about Avastin

Hi....Thanks to all of you for the loving and caring support for my Aunt.  I am praying this new approach is the answer to help her be more comfortable.  I will be driving down to spend time with my Aunt Sophie on the 16th.  I can't wait to be with her, spend time and laugh.  She  always has a way to do that.  HAve a great day!     Love,  Hollie

Re: Finally heard about Avastin

Hello to you all,
I thought I would write because I have not seen any posts from my Aunt Sophie lately.  Her sister, my Mom, has come from Iowa to be with her at this time.  It is such a good thing to have someone there all the time to be with her.  At this time the avastin has not proven to be much help.  We are still hoping that changes soon because the ascites is quite bad.  I am driving to be with her this Memorial weekend and then she and my Mom may come up here for two weeks.  That of course involves getting approval from the insurance for a drain up here.  It would be just great if we could get her up here again.  She so loves the mountains.  She is spending time with Sarah and that adorable Grandbaby Anna this week too.  Safe travels to you all if you are traveling this weekend.  I will be traveling about 950 miles this weekend.  Love and prayers for you all,      Hollie

13 (edited by marions Wed, 20 May 2009 22:51:49)

Re: Finally heard about Avastin

Hollie....Sophie's postings are dearly missed.  Thank you so much for keeping in touch.  How nice of your Mom to spend the time with Sophie and how wonderful for Sophie to be enjoying little Anna.  Crossing my fingers that the trip to the Sierras works out fine.  It is a three hour drive for me to Truckee and how I wish to get there soon, myself.  The area is absolutely stunning and I consider it to be one of the more beautiful places on earth.  Please, tell Sophie that many loving wishes are coming her way and you, Hollie, be safe on the road, this weekend. 
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Finally heard about Avastin

Thanks for the post , Hollie and give our best to your Aunt Sophie. We hope she has an enjoyable visit with your mom and I just know that baby makes her smile!!!  Have a great weekend yourself!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Finally heard about Avastin

Along with Marion and Lainy, I'd like to pass well wishes on to you and your Aunt Sophie. I too miss seeing her on the board, & keep her in my prayers. Let her know that we are thinking of her, wishing her well, and sending hugs.  You travel safe & enjoy the weekend too Hollie!

-Tess

Re: Finally heard about Avastin

Hollie,

Thanks for the update, I am sorry to hear the ascites have not improved. Please tell Sophie we miss her but we understand she needs to take care of herself and be a grandma!

Patty

Re: Finally heard about Avastin

Morning....Thanks for the reply's..Marion...where do you live?  If you make it to Truckee let's have coffee or lunch..That would be great.  I will write when I get back from my visit.  My Mom is actually moving in with my Aunt so she is not alone any longer.  It gives me so much comfort to know someone is with her.  I will tell my Aunt you are all rooting for her and she is always thinking of you all here.  This web site has been an amazing support to her and me too..HAve a great day!     Hollie

Re: Finally heard about Avastin

Hollie......Sophie must feel so very loved by her family.  What nicer gift is there then to care for the one's we love so much?  I am peddling between Santa Rosa and Berkeley and yes, I will be contacting you when going to the Sierras.  Don't quite know when that will be this year, as much traveling is on my schedule for the next few months. 
Have a wonderful weekend.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Finally heard about Avastin

Hollie;
I just want to echo everyones sentiments about your Aunt Sophie. You all will be in my thoughts and prayers. I'll say a special prayer that you have a safe drive to the Sierras. I was born and raised in California and lived there all my life up until 10 years ago. I have great memories of the Sierras as a kid with my parents. Drive safe and have a wonderful visit with your family this weekend. God Bless,
Jamie

Re: Finally heard about Avastin

Hollie,
  Please tell Sophie I send my love, and wishes that those darn ascites will get under control. I am so glad your Mom will be staying with her - what a blessing!


Joyce C.