Topic: Got my first infusion of Avastin today

Hello Dearest Friends,

Yesterday I had a paracentesis yielding 6.9 liters of fluid, and today I received my first infusion of Avastin with nothing else.  It took about 90 minutes.  So far I am feeling okay.  I will keep all you brave warriors posted.  I will still be drained once a week and Avastin every other week until oncologist knows if it is working.  I am weighing myself everyday, and the past few weeks  I have gained 2 or 3 sometimes 5 pounds of fluid a day.  My doctors's words, "If this works, it won't cure you, but it could prolong your life and give you a better quality of life."  I mostly listen to you guys instead of him. 

My niece Stacy and her five year old Olivia are here from Reno until tomorrow, and having them here has done so much for my morale.  Hollie from Truckee drives down tomorrow until Sunday.  Sarah and baby Anna will come on Tuesday and stay a few days.  I love my girls so much. 

Faith in Christ, and my prayers for all of you daily.
Sophie

Re: Got my first infusion of Avastin today

Sophie,

Sounds like a really great girls' lovefest!  I hope you are feeling fine so you can enjoy your time with them, little Anna must be growing by leaps and bounds.

Patty

Re: Got my first infusion of Avastin today

Sophie....What a great get-together.  Can't wait to hear all about it.  Wishing for a wonderful time with everyone and especially, little Anna. 
Tons of hugs coming your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Got my first infusion of Avastin today

Atta Girl!  Can't keep a good woman down. Enjoy all your girl time together.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Got my first infusion of Avastin today

Sophie,
I am so proud isnt the right word, impressed isnt either...i dont know but I feel so strong about your attitude and strength and determination.  I hope the Avastan works for you and until you find out, enjoy girl time. I just had my sister here and boy was it a tonic.

Hugs your way.
Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Got my first infusion of Avastin today

Sophie, you are amazing! What an awesome group of gals to hang out with! Have a super time...and know that you are in Em's and my prayers!

Love,
Heather

Re: Got my first infusion of Avastin today

Sophie,
  Heather had the right word - you are amazing. I hope the avastan works for you and that you enjoy your visit with all the girls.

God Bless,

Joyce C.

Re: Got my first infusion of Avastin today

We're praying for you Sophie, and I hope that you enjoy every moment with your girls..... as I'm absolutely certain they will be loving their visit with you!  Fingers crossed that the Avastin brings you some relief!

Tess

Re: Got my first infusion of Avastin today

Has your doctor(s) discussed a TIPS (transjugular intrahepatic portosystemic stent-shunts) procedure with you?

I don't know your current level of health but from what I was told it can be a procedure for constant fluid build up - but has a possible  increased chance of hepatic encephalopathy (unfiltered toxins not filtered by your liver messing with your brain).

I've only needed a couple of paracentesis procedures (both of which were horrible for me - the area didn't get numb enough so I felt the needle all too well in the deep tissue where they inserted it - the last one which was a CT guided one to check a pocket for infection I insisted on more sedation so I was basically unaware of it) so I didn't need to consider the procedure yet but they had someone let me know it was available if the fluid issue became more of an issue.