Topic: Hello and glad to find this forum!
What a blessing! I did a Google today for CC, not expecting to find anything new, and somehow found my way to this site...My husband, Tom, was finally diagnosed with CC after surgery to remove the tumor from his liver. In June he was diag. cancer of unknown primary and told there were no surgical options. His liver tumor was discovered on a CT scan for something else. To tell the story with all details would be exhausting for me now, but the short version is that after a try at Xeloda which produced no results, his oncologist referred him to a surgeon with a high reputation and years of experience doing liver surgery & this dr instead of saying "inoperable" said he was willing to give surgery a try if Tom was. He said due to the location and increasing size of the tumor, it would be a real challenge, and if he got inside and saw cancer spread beyond what he could take out, he would not continue the operation. So on Jan 10 when Tom went into the operating room, I knew that the longer he was in, the better the news would be. Four hours went by, then 4 1/2...Finally dr. came out with a smile and said, "I'm tired..." He said Tom was in for a long recovery, but he thought it was worth it; he got the tumor and also took out Tom's gallbladder which was full of stones. Fast forward...Tom was in intense pain for the first five of his 10 days in hospital, and was exhausted and confused for the next few weeks after coming home. He's finally able to drive, for the first time since surgery, yesterday when he took himself to the dr for follow up.
I am interested in your stories and glad that Tom's cancer finally has a name. "unknown primary" was so scary. Now that he's feelig better, he's positive the surgery was a good idea. Even if eventually he gets a recurrence, the pain in his abdomen is gone except for the incision pain. His undiagnosed gallbladder disease must have been the source of a lot of pain he had last fall.
From June to Sept last year, his scans showed no tumor growth even without treatment. He waited to start chemo until we had investigated options. After emails, paperwork and waiting he got a consultation with a research-affiliated cancer center. When they did scans, the drs who reviewed them told Tom, "In your body, this disease seems to be moving slowly." This was echoed again by the surgery follow-up Tom had yesterday. Dr. said instead of putting him on chemo, if the next scans show that "all is quiet" and "nothing lights up" that Tom should consider not going on chemo but concentrate on regaining weight and rebuilding muscle tone.
What we've learned is that despite ominous prognosis, every person is different, and that you must keep consulting and asking questions.
Thanks for reading, and I hope to get to know other folks here.