Topic: Questions for anyone that can help
Hello and Good day to everyone,
I was diagnosed last July and after five months of chemo: cisplatin and gemzar for the first two and than the following three I was on gemzar and xeloda. After the five months my cancer did not spread so my doctor decided to take me off the drugs to dry to determine if it was a slow moving cancer or if the chemo was keeping it from spreading. After going off the chemo my blood counts had went up for a little while but they are now slowing falling again. My doctor assumes my platlets are being absorbed into my spleen for that is enlarged also. HAS ANYONE ELSE EXPERIENCED BLOOD COUNTS DROPPING WHEN NOT BEING ON CHEMO!
After having three ercp's and two liver stents placed I was told i was going to get into a clincal trial at a larger hospital, after working with the doctors for about a month they told me since my platlets were under 100 they could not administer the trial:( Im back at square one with my doctor and she has told me all they really have left to offer is to go on xeloda. Im so very confused on this being my last option!! So im working on a referral to Mayo in Rochester. Has anyone had a similar experience or have any suggestions on what I can do next. My time is running out i have been becoming more nauseated , have been loosing more weight, and at least once a week i end up vomiting. Im getting so frusterated and Im starting to loose hope in my doctors!!!! HAS ANYONE HAD SIMILAR EXPERIENCES OR HAVE ANY ADVICE IM NOT READY FOR THIS TO BE MY LAST OPTION!!!