Topic: Symptoms

Hello Everyone!  My husband has been experiencing two new "symptoms" these past two weeks.  I was wondering if anyone else had experienced these:  a metal taste in his mouth and an odor about himself (I have noticed the odor).  I told him to bath which he does twice a day (trying to be funny), and to follow up with his dentist to insure he didn't have a loose cavity (hoping for reasonable and simple explanations).  I think at this point every new sensation that he experiences weighs heavily on his mind as I'm sure is par for those with cc.  No other "symptoms" at this time except for fatigue, discomfort, and some pain depending on activity.  He has yet to start any treatments. 

Karen

Re: Symptoms

Karen....when was the last time your husband had a blood test?  The odor you are describing may be related to higher bilirubin count.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Symptoms

Hi Karen, my Dad constantly complained about the metal taste in his mouth & food tasting like metal. We thought it was a side effect to the chemo. Lemon (ice, tea, wedges, aide) all use to provide him with a bit of relief, or at least cleanse his pallet enough so that he could enjoy some other foods.  I've also heard that altoids can help. Best to you and your husband.

-Tess

Re: Symptoms

Hi Karen,

My dad also went through a period of having a metal taste in his mouth. However, this only lasted for a short while and he never had any type of chemo treatment, he had PDT. He hasn't had that taste for some time now and when he did experience it, he said that it wasn't constantly there and that it would come and go.

Best wishes to you and your husband.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Symptoms

As far as body smells, I find myself smelling differently than I normally do - especially after waking in the morning wet from night sweats. I really can't stand it sometimes, but there's not much I can do about it besides cleaning myself. I think the chemical makeup of my blood is different so it leads to a strange/different smell than I'm used to.

Re: Symptoms

Thanks everyone for the info!  Thus far my husband has had no treatments of any kind other than tests.  It's been two weeks since blood work has been completed at my husband's last biopsy.  Of all the blood they have taken from him, we have been told no specifics.  I guess we really need to sit down with a doctor and ask ask ask.  Today we officailly begin our attack on this dreaded disease.  It's off to Cleveland Clinic for his right vein portal embolization. 

Karen

Re: Symptoms

Karen...good luck, today.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER