Carolann - I see that you're in the UK and already the UK people have gotten right on track, giving you the information you need. I'm in the US so couldn't help you with that stuff - I'm so glad there are such knowledgeable and helpful people on this board who CAN help you with all the practical details. I should have realized you were in the UK since it was 5 in the morning here! I just can't sleep since my mother passed.
Anyway, keep in mind that everyone's case is different with this horrible cancer. Some people live only 2 months - like my mother - and some people live 8 years or more after diagnosis (there are a few miracle stories on this forum, lots of people still going after years, especially if they're young when diagnosed). The doctors tell everyone they have a year, maybe 2, and everyone's different. If they're putting a stent in her bile duct so that it's not blocked, that seems to work wonders for many people and gives them a lot more time and a lot more quality of life. Right now you still have hope - so cling on to that or you'll go crazy!
Best of luck and sorry I didn't respond sooner, but I had to go to bed eventually- Joyce