Topic: Low platlets and not on chemo

My cancer is now in my lungs and they believe in my stomach.  The only thing preventing me from getting back on some kind of treatment is my spleen ( it is absorbing all of my platlets) .  While consulting at Mayo the suggested that they could take out the spleen with many risks but a chance that my platlets would raise once again.  My doc is also suggesting a Partial embolization of the spleen.  They would partially kill my spleen with radiation to see if that would help my platlets go up.  There is just so many risks to think about and the more they put off doing anything or trying to figure out the best way to go my cancer continues to spread.... 

Has anyone had a similar experience or had the same issue?  If so I would love some advice!!!

Re: Low platlets and not on chemo

I have never heard of removing or killing off the spleen. I dont have an opinion to offer. But you are right about difficult decisions. I hope someone comes along to offer advice and insight, but I really cant remember anyone who has had this problem.

And as to the decision, you will make the one that is best for you. You cant go back and question your decisions. Everyone makes choices based on what the know and what they feel. Every decision we make in regards to cc is a gamble. It is a sneaky disease and doesnt play fair. So whatever decision you make, it is the right one for you at the time and that is the best we can all do.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Low platlets and not on chemo

I also have a problem with my platelet count so that I have only 2 chemo treatments followed by a rest week.  The rest week builds them up again.  The only treatment for low platelet numbers that I have been told about is a platelet transfusion.  You can find out a lot about platelets from this site:

http://www.cancerbackup.org.uk/Treatmen … ansfusions

Ron

4 (edited by marions Sat, 13 Jun 2009 17:10:23)

Re: Low platlets and not on chemo

Tiffany....we have had numerous discussions about low platelets which at times where addressed with filgrastim injections. But, I also don't recall anything in re: to having the spleen removed due to low platelets.  There have been postings in re: to cancer suspected to have migrated to the spleen but, from the way you are explaining it, your situation seems very much different.   Hopefully, someone out there will be able to share some knowledge with us.  Considering, you are very young some of these more uncommon treatment plans might be suggested by the physicians at the Mayo Clinic.  Have you asked how many people have undergone spleen removal and how these patients have faired? 
I am sending all my good wishes your way and I am hoping for an answer to be found, real soon.
I am sending tons of good wishes your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Low platlets and not on chemo

This is a quote from the Cancerbackup site:

"Platelets usually survive for 7