Topic: Another set back
Well more bad news this week or at least a set back. I had posted that my one year scan post resection now showed a 2cm tumor in my liver and spots in both lungs. Had a clear scan a little over 3 months before that. Given 3 choices, do nothing and scan in 2 months, take one of chemo drugs I was on before, or go back on both. I opted to go back on both (Gemcitabine/Xeloda)to really fight this demon. I had my first round a week ago Monday. Went back this Monday and got pulled into a room and told the Dr would need to talk to me. Never had this happen before. Well, my WBC and neutrophils were really low, lower than they had ever been even after 7 months of straight treatments. I havent been on chemo for 9 months. He now has me off all chemo this week and next week I will get Gemcitabine if counts are better but will not put me back on the Xeloda. The day after the chemo I will get a shot of Newlasta. We'll have to see how that works to determine next step. If it helps, then he says I'll get Gemcitabine once a week for 3 weeks like I used to, but no Xeloda, and the 2-4th days after chemo I'll give myself injections of Neuporgen (sp?). I am really mad that my body isn't doing what it needs to. I hate not being able to take the chemo that worked before. On the other hand, this week I really got my fight back. I hadn't talked to the Dr since we got scan results. I felt that he was maybe writing me off somewhat. Well, after he told me about blood work and his plan I decided to speak up. I told him that I had heard of other patients with cc with mets to lungs that still were around and that had even had radiation for liver tumors, etc. I said that I want to treat this aggresively and not to write me off. That I know he rolls his eyes when I talk about beating this, but that even if it is unlikely, improbable or unrealistic that I believe that it is not impossible. All things are possible with God and that is what guides me. I was surprised that he said he was sorry if I ever felt that he was "rolling his eyes". That all options are still on the table for me (not what I thought I heard the last visit) but that he was just looking at the first choice option and not looking beyond that until needed. So I felt better about that but still bummed that I can't tolerate our first choice. I guess I just have to change my armor to go into this battle now. Sorry I'm long winded. I just needed to share what's going on and get your opinions about current option. Thanks a bunch guys for being here. You'll never know how much you and this site mean to me.