Topic: AND THE GOOD NEWS IS......

A CLEAR SCAN!!!!  WHOO-HOOOO!!!  I know that I could not have gotten through it without all you and your prayers, thoughts, wishes, and all.  I have posted all the details about our day yesterday and the Doc visit on my Caringbridge site.  We are to meet with an Oncologist next week to discuss chemo. Doc says that it is up to us if we do it or not.  Is there anyone that would not do the chemo?  I would appreciate your thoughts on chemo, should we do it our not??? 

THANK YOU HUGS TO YOU ALL!!!

For more details go to:

http://www.caringbridge.org/visit/davesjourney

Beth

I lost my incredible husband Dave to CC February 13th, 2011 after a 2 year battle.  He leaves behind a legacy that will never be forgotten..I will miss you forever.

Re: AND THE GOOD NEWS IS......

Beth,
All I can say is Woo Hoo and thank God. This is great news!

As far as the chemo goes I'll tell you my experience. I had a resection June 08. I wanted to do chemo for 3-6 months to be sure. My Mayo Dr said that he wouldnt usually do it, but because I wanted to we would. I didnt tolerate it (blood counts dropped) so only got 1 month of Xeloda and 2 of 3 doses of Gemcitabine. I had clear scans up until June 3rd. I now have a tumor in the liver and lung mets. I did not tolerate this first round of chemo.

I have mixed feelings, on one hand I am kicking myself that I didnt push for the chemo. I consulted with 2 other Drs and they split, one for chemo one against, so I went with the 2 out of 3 for no more chemo. I had a good 9 months off chemo and was able to not worry about side effects, etc. If I had tolerated the chemo I would have done 3-6 months. Would it have delayed this relapse, I dont know. Maybe I'd be exactly where I am now but weaker. Only God knows. But if I had been strong enough to tolerate the chemo I would have done it.

Take care and God Bless,
Jamie

Re: AND THE GOOD NEWS IS......

Awesome news!  Let's pray he stays cancer free forever!

Re: AND THE GOOD NEWS IS......

Beth....I could not wait and looked at your blog already before you had posted the good news.  Congratulations.  What a joyful day it is!
The question of chemo has been debated many times, on this board and I believe, until everyone responds positively, it will always be a the biggest issue when dealing with this cancer.  By gathering the opinions of physicians and the members of this site, you will be able to make an informed decision.  You will get there.
Tons of good wishes coming your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: AND THE GOOD NEWS IS......

Beth,

Another WHOO_HOOOOOO!!! for you & Dave.  That's all I can say. I'm going to read the post on the caring bridge site now. What great news.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: AND THE GOOD NEWS IS......

Beth and Dave,

All I can say is that God answers prayers.  I am so thrilled for both of you!

Hugs and love,
Pam

My Mom lost her one year battle with CC on April 3, 2009.

"A prognosis is simply an audit of how truly precious each day is.  Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.

Re: AND THE GOOD NEWS IS......

WOW, Beth. So, now I sprained my back doing cart wheels!!!  That is the greatest news. Teddy and I will never have to face the "do we do chemo or not" as it will not help his CC in the bile ducts, and we were told that now by 5 top docs.  It will have to be your decision. Weigh the odds of it retuning with and without the chemo. But for now enjoy, celebrate and HAPPY FATHER"S DAY!!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: AND THE GOOD NEWS IS......

Hi Beth,  I am so very happy for you, thank god. It is what everyone prays for--a clear scan. 

You asked if anyone would not do chemo, and I wanted to respond to tell you that if it had been my husband, I would not do it.

What I will say some may not agree with but everyone should research it. I have found that everything I've read makes so much sense. 

If he has no cancer in him, then he doesn't need chemo.  Chemo will damage healthy cells and weaken the immune system. What you guys need to work on is changing his body.  The first thing I would suggest is buying the book " beating cancer with nutrition" you've probably seen it mentioned here before.  Follow it like law.

Many times you hear that people who are clear of cancer have reoccurance....it is stated that it is because people don't look for the unlaying reason which caused the cancer to begin with.  Everyone who is blessed to have beaten cancer must think about changing something in them to prevent a reoccurance. 

Let me give you this analogy....our bodies are 75 % fluid, including blood.  Like a swimming pool our fluid must be PH balanced like the water in the pool.  If it's not balanced, too much acid, the water gets dirty, green and bacteria.  Well the same goes for the body...if your body is correctly balanced you should be able to prevent disease. Everything I read regarding this makes sense.  They sell PH test paper for humans to check their PH, I would suggest just give it a try.

A side sorry......I have a friend who has been on medicine for years for GERD (acid reflux) and a diet according to his doctor.  I told him about the PH balance theory that I learned and he has been following it for a year now and eating oranges again, tomatoes, all the things the doctor told him he could not have, and he is now off his medication and his acid reflux disease is gone.  The point is that we have to find out what our bodies are like inside...and you can make changes to your diet to correct problems.

The next time you have a doctor's appointment, I would suggest to have Dave's vitamin D level checked.  It has been proven that most people are deficient in this vitamin.  Look at this link regarding the benefits of vitamin d and fighting cancer. 
http://www.cnn.com/2008/HEALTH/dailydos … index.html
This is why studies show that people fight cancer better in the summer because of the vitamin d from the sun.

I truly believe people can prevent any reoccurance or anymore damage to cells which become cancer by changing their bodies. 

If your husband eats lot of processed foods, red meat, sugar, cookies cakes all that stuff that has preservatives in it...diet products with artificial sugar then he should stop. Get that book..there are a few other great books too...by Richard B

I miss you more and more everyday. 
RFL 6/28/58-12/27/08

Re: AND THE GOOD NEWS IS......

LuLuu,

Thank you so much for taking the time to post about your knowledge on alternatives to chemo.  I am going to try to locate this book, and learn everything I can about nutrition and supplement.  My step dad is 85, and looks like he is 65.  His entire life he has taken 8 different kinds of vitamins, including fish oil.  I an convinced that is why he looks and acts so great!

I appreciate all the information that I can gather on this.

Thanks so much again!

I lost my incredible husband Dave to CC February 13th, 2011 after a 2 year battle.  He leaves behind a legacy that will never be forgotten..I will miss you forever.

Re: AND THE GOOD NEWS IS......

Great news, Beth and Dave!  I couldn't be happier for you both.

Sending congrats,
Jolene

"Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain."     ~g. b. hinckley

Re: AND THE GOOD NEWS IS......

Beth, I so happy you appreciated the info...some may think it's too radical.

That's amazing that your Step Dad at 85 had the foresight years ago to take vitamins and fish oil.  See, we can learn from people like him.

The book I recommended, in the back, you'll see a chart--- follow that faithfully--actually your entire family will benefit from that kind of eating.
It lists food in catagories Best to Worst...and of course stay away from the bad stuff.
You can order that book on Amazon .com, it's always available there. 

Until you get the book and read through it, get him started on the fish oil and at least 1000 iu's of Vitamin d until his level is checked. 

Please feel free to ask me anything if i can help at all. I love talking about this, I truly believe it will help.

Good luck with everything....

I miss you more and more everyday. 
RFL 6/28/58-12/27/08

Re: AND THE GOOD NEWS IS......

Beth,

Delightful news!

For me, the decision was "How aggressive did I want to be in fighting cancer?" I told my oncologist on our first visit that I wanted to be very aggressive, and I had Gemzar and Cisplatin. Six months of the pair was planned, hoping to reduce the tumor so that I could have surgery. At the end of 6 months, the tumor was gone! No surgery at that time. However, other issues followed, and after about 7 months, I had a second set of chemo treatments, with the same chemicals. I am again in remission, and doing great most of the time, except when I feel mildly depressed, which isn't often.

My Mom was diagnosed with CC at the age of 86 and chose Not to pursue chemo, radiation, or surgery. Her doctor thought she might have a year to live. She's still with us now, 2 years later. Her decision had more to do with her age, the fact that she has had open-heart surgery, and after 60 years of marriage, Dad passed away in 2005, so she misses him terribly and is ready to go home. She felt that treatment would definitelhy affect quality of life but might not improve the quantity of her lfe.

I'm saying both stories because I believe there are no perfect predictions about what results will come from any treatment plan that would apply to all, so the patient should learn as much as they can handle and be as involved in the decisions about treatment as they want to be. If a patient doesn't want to decide on a treatment plan, then the choice of a doctor you trust becomes even more important. In other words, there are also no wrong answers.

Of course, for me the "perfect" answer depends on faith and a relationship with God. He is the source of all our miracles!

I'm still praying.
Louise smile

Re: AND THE GOOD NEWS IS......

Louise,

I just read your post to Dave, and he thanks you so much for giving us both perspectives into the options.  We are still waiting for the Oncologist to review his file further, and call us to schedule the appointment for the consultation. 

Hooray to you and you mom!!  Sounds like you both are very strong women!

Hugs to you both!

Beth

I lost my incredible husband Dave to CC February 13th, 2011 after a 2 year battle.  He leaves behind a legacy that will never be forgotten..I will miss you forever.