Topic: More on the Barcelona Conference for Gastrointestinal Cancer

Hi All

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Re: More on the Barcelona Conference for Gastrointestinal Cancer

Marion, I am so glad you had such a successful Conference. And to be with Pauline as well. Thank you to both of you for getting our plight the attention it so badly needs. Sounds like we are slowly but surely getting to be world re known! Glad that you had time to enjoy and more glad for your safe travels.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Thanks so much, Lainy.
Hugs to you and Teddy
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Marion,

Thanks for the update and for giving Pauline her hugs from me!  smile 

I am glad to hear that the response was so good.  I am sure that your presence there has made an impact & is helping to get the word out. 

Thanks so much to you & Pauline for your efforts.  They are greatly appreciated.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Marion,
Thank you for being our eyes and ears.  The struggle with CC is so difficult , and there are only so many hours in the day for individual research while also actively caring for our loved ones.  We appreciate that you and Pauline are this committed to the cause.  Thanks, Elaine and Gary

Live each day to the fullest

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Thanks Gary, and Darla but, don't forget that each and everyone on this board is contributing in his and her way also.  Your information and support is invaluable to all.  And,  most importantlyly...we need each other when being confronted with this lousy cancer. 

I cannot say it enough: Stacy, Rick, and Sara.  Thank you for your tireless work in making all of this happen.  Without you, none of us would have ever had the opportunity to have our voices heard.  Thank you, from the bottom of my heart.

And on we go.  We will continue to fight this disease, we will continue to reach out to those less fortunate of receiving the care needed, and we will continue to fight for early detection and a CURE.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Marion,

Massive thank you to you and Pauline for all your efforts here, they are greatly appreciated by us all. It sounds like you both had a very successful conference and spoke with so many people to help spread the word. What a team the pair of you make!

Once again, many many thanks to you both.

My best wishes to you both and to everyone else as well.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Hi Gavin....thank you.  It is always great to hear from you.  How is your Dad coming along, and your Mom? And, the renovation?

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Hi Marion,

It's always great to hear from you too. I hope you and Pauline managed to enjoy Barcelona, I hear that it's a lovely city, and no doubt the weather was lovely also. The last month has been really hectic so I'm glad to get it over with to be honest. We couldn't get a caravan for them but managed to get a room in a nice guest house not too far from here. Bit of a nightmare only having a small room, but it was all we could get on such short notice once they got the start date for the renovations. The owner of the guest house is reallly nice though and has treated them really well. And the building work is now finished so they get home tomorrow once the house is all cleaned. Ive been going down to see them about 3 or 4 times a day and taking them out and stuff so they can get out of the room a bit and also taking them out for their meals at night. At least the weather here has been scorching the last few weeks so that has been a bonus.

Dad now goes to day care twice a week and he is still loving it. Friday it is all men so the humour there is different compared to Tuesdays which is mixed, they seem to like his lousy jokes! The doctor there has been really happy with his blood test results recently so that is good news. In all the time dad has been away, he has only had one lousy day which he just slept through. He has had no re-appearance of any jaundice and only the occasional twinge in his side where the stent is, his urine is also normal colour. Day care is working out great as it is very informal and relaxed and I can speak to the doctor and specialist nurses every time we go and talk about anything at all. Dads appetite has shown no signs at all of reducing and he is certainly enjoying his full cooked breakfasts every day at the guest house! I definitely could not eat the amount that he is eating every morning, he is eating like a horse! So all in all, I'm really pleased with how he is doing right now. It's his 65th on the 12th so that is something to look forward to.

Mum saw her COPD nurse 2 weeks ago and her lung and breathing tests have all improved which is good. She still cant walk too far, but that has also improved over this year. She is underweight though and her nurse wants her to put on weight so she is on Skandia shakes every day for the next month. One positive to come out of having to move out for 3 weeks is that mum was forced to go out every day for an evening meal as they dont do that at the guest house. So we hired a wheel chair for the month so she could get out and she is now loving being out a lot more than the last few years. When they go home, we are going to buy her her own wheel chair so that she gets out more. It will just be a small fold up one that I can keep in the boot of my car.  Getting out a lot has done wonders for her moods so it's something I want her to keep doing.

I will be glad when they get home and things can get back to some level of normality again. They tried to treat this time as a holiday and have enjoyed lots of it, but this week it has been getting to be a bit of a drag for them. Living in the one room, it felt as if they were living on top of one another a bit, so they are looking forward to getting home tomorrow. Now we just need to sort out what is going into their new kitchen.

Sorry for hi-jacking your thread and rambling on!

Best wishes and a safe flight home.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

10 (edited by magic Thu, 02 Jul 2009 04:39:41)

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Thats fantastic everything went so well over there ,Marion and Pauline
                                         Janet
addit-Gavin-hang in there,your going great

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Thanks  so much Janet
Gavin...please, hi-jack my thread anytime.  Lot's of work heading your way with moving your Dad and Mom back into their beautifully decorated home.  BTW...if you need help with decorating the kitchen I bet, the members on this board are ready to give their input.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Bravo ladies!  Thank you ever so much for bringing more light to this horrible disease. 
Peace,
Karen

Wishing all God's blessings!

Re: More on the Barcelona Conference for Gastrointestinal Cancer

As always, thanks for your work ladies. I wish I could  have been there...though I dont speak any foreign language fluently (unless you count Glaswegian smile ) so I couldnt have helped that much. Your effort, enthusiasm and hard work are always admired.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Kris, you and Ron would have completed our little circle at this conference.  But, there is always next year.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Dearest Marion and Pauline, I write to you with tears in my eyes... in hopes that actions such as yours will continue to give rise to collaborations that save lives. I feel like there is an entire cc community that has passed on, sending thanks from the other side.  Let their spirits give you energy to keep going!

Hugs,
Tess

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Hi energetic and charismatic  ladies and good will abmassadors of mankind in enlightening the awarness of CC. My deepest gratitude and thanks for shouldering  and helping many a people in many ways. its nice to hear that your barcelona confernce could get the world attention on cc. hopingly one day i will join you in these confernces. mahipal

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Tess...hug to you, also.
mahipal....anything is possible.  India is not out of the question.  We might see you there.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: More on the Barcelona Conference for Gastrointestinal Cancer

Karen...I just read thorugh the posting and realized that I did not address you.  Your comment is important and well received.  Thank you so very much.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER