My husband was diagnosed with Cholangiocarcinoma in August 2008. Our surgeon in our hometown made arrangements for us to go to Johns Hopkins in Baltimore, Maryland to hopefully have a liver resection. Our surgeon was great but unfortunately my husband was not able to have the resection because the tumor involved the confluence of the bile duct as well as the portal vein and hepatic artery. The surgeon took out his gall bladder and rebuilt part of his bile duct so he could drain the bile from his liver. He also still has 2 plastic stents in his chest helping to drain. We were very happy with our surgeon. He worked for 8 hours on the tumor but just couldn't get it all out and it was more involved than what showed up on the imaging tests. The following is our surgeon's name and contact information:
Dr. Timothy Pawlik, M.D., M.P.H.
Division of Surgicial Oncology
600 N. Wolfe Street
Baltimore, Maryland 21287
You can find his profile at www.hopkinsmedicine.org/surgery/faculty/Pawlik
I am sorry but I don't have an email address for him. I would highly recommend Dr. Pawlik. However, if you can't get an appointment with him, there are other surgeons at Johns Hopkins that perform bilary surgery. Johns Hopkins is experienced in this kind of surgery and research. My husband had excellent care at this hospital. Good luck and I will be thinking of you and your brother.