Topic: Treatment Centers/Physicians

For those of you who would like to share the names of the physicians and centers treating you (or have treated you) this might be a good place to share the information. 

Thanks a bunch,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

2 (edited by Jamie D Mon, 10 Aug 2009 15:44:20)

Re: Treatment Centers/Physicians

I am being treated at the Mayo Clinic in Minnesota.

My oncologist in Dr Tim Hobday.

My surgeon for resection was Dr. David Nagorney. (Great guy, gave me the oportunity that others would not)

Jamie

3 (edited by mlodge Tue, 08 Sep 2009 18:09:44)

Re: Treatment Centers/Physicians

I am at the Princess Margaret Hospital in Toronto.

Surgical Oncologist is Dr Alice Wei 416-340-4232, Medical Oncologists are  Dr Jennifer Knox 416-946-2399 and Dr Anne Horgan, and Radiation Oncologist is Dr Rebecca Wong.

Thanks,
Mel

Don't let cancer ruin your day!

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4 (edited by Dianne Wed, 05 Aug 2009 00:10:02)

Re: Treatment Centers/Physicians

My treatment center in Tampa, FL, is H. Lee Moffitt Cancer Center & Research Institute (aka Moffitt).

My surgeon is Mokenge (Mo) Malafa, Division Chief, Gastrointestinal Malignancies

My oncologist is Jonathan Strosberg

My radiologists are Sarah Hoffe and Michael Yu

http://www.moffitt.org/

Re: Treatment Centers/Physicians

Gary's surgeon is Dr. Douglas Tyler at Duke.  His oncologists are Dr. Rebecca Cody in Conway, SC and Dr. Mark Moskowitz in Naples, FL.

Live each day to the fullest

Re: Treatment Centers/Physicians

If you need to find a good oncologist and live in a small town far from any big cancer centers, I highly recommend asking every doctor and nurse you know (even socially) about who they would want  treating them if they got cancer.

I live in a town of 10,000 in central Kentucky, and that's how I found my wonderful, wonderful oncologist-- a nurse I'm friends with told me about him. (The one I had at the University of Kentucky cancer center was a gloomy, pessimistic, unhelpful dork.)

Peace, hope, and healing to all!

7 (edited by amylea Fri, 07 Aug 2009 11:37:59)

Re: Treatment Centers/Physicians

Mom goes to IU Hospital in Indianapolis, Indiana.
Attila Nakeeb was the surgeon who did her Whipple procedure and her hernia surgery... we loved him!
Romne Clark is her oncologist
Higinia Cardenes is her radiation oncologist

We have been so fortunate.  They are all wonderful to work with!  It is so helpful, because they all work together and keep each other updated on how Mom is doing.

Amy

8 (edited by dlm2010 Sat, 08 Aug 2009 06:35:43)

Re: Treatment Centers/Physicians

My husband, Ted, has been treated by the following doctors:

Dr. Pawlik performed an 8 hour surgery on Ted, but a liver resection was not possible due to the extent of the tumor. He took out his gall bladder and performed a Roux en y to allow better drainage for the bile which has been instrumental in keeping his GI area functioning properly.  Dr. Pawlik is highly regarded in this area of surgery and has performed many successful liver resections.
Dr. Timothy Pawlik, (Surgeon  Specializes in Bilary Surgery)
Johns Hopkins Hospital
600 N. Wolfe Street
Halsted 614
Baltimore, Maryland  21287
410-502-2387


2nd Opinion Doctors (Kansas City, Kansas area)
Dr. Joaquina  Beranda  (Oncologist - Specializing in Liver and Bilary Cancers)
The University of Kansas Hospital
Westwood Cancer Center & Medical Pavilion
2330 Shawnee Mission Parkway
Westwood, Ks.  66205   
913-588-7750   
             
Dr. Eashwer K. Reddy (Radiation Oncologist)
The University of Kansas Hospital
3901 Rainbow Boulevard
Kansas City, Ks.  66160
913-588-1227
Our 2nd opinion doctors helped set us up with treatment plans and the doctors we currently see in Wichita, Ks.


Current doctors we are receiving treatment from in our hometown of Wichita, Kansas

Dr. Parvan Reddy  (Oncologist)
Cancer Center of Kansas
818 N. Emporia
Wichita, Ks  67214
316-262-4467

Dr. Joseph Kelley, M.D. (Radiation Oncologist)
Via Christi Cancer Center
817 N. Emporia
Wichita, Ks.  67214   
316-268-5927

We have truly been blessed to have received excellent care from all of these wonderful doctors. Their knowledge and expertise have been crucial in helping us make decisions and giving us strength.


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9 (edited by tiapatty Sun, 24 Oct 2010 20:52:07)

Re: Treatment Centers/Physicians

My mother's surgeon Dr. John Brems at Loyola in Maywood, IL, was excellent:

http://www.lumc.edu/templates/luhs/phys … q_cntr=224

Feel free to contact me if you have more questions about him.

I had done some research on other Chicago area hospitals and docs who seem to specialize in cc and found this information, though I have no personal experience with them:

Rush University Medical Center
http://www.rush.edu/rumc/page-1160429723857.html

Dr. Ross A. Abrams
http://rush.photobooks.com/directory/pr … id=9318658

http://rush.photobooks.com/directory/pr … id=5511133

Dr. Daniel J. Deziel
http://rush.photobooks.com/directory/pr … id=0001810

Dr. Arnold Herskovic
http://rush.photobooks.com/directory/pr … id=0523797
   
Dr. Abhitabh Patil
http://rush.photobooks.com/directory/pr … id=7554437

Patty


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Re: Treatment Centers/Physicians

I have not had personal experience with these but after some research, these two come up often as highly recommended when dealing with CC:


Barnes Jewish Hospital
Washington University     
St. Louis, MO
http://www.barnesjewish.org/

Mayo Clinic
Rocheter, MN
www.mayoclinic.org

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

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Re: Treatment Centers/Physicians

Great idea for a thread Marion.

My dad was diagnosed and treated with photodynamic therapy by:

Mr Iain Tait
Ninewells Hospital
Dundee
Scotland

http://www.dundee.ac.uk/surgery/onestaff2.php?ID=60

http://www.nhstayside.scot.nhs.uk/patie … ells.shtml

Hope that helps.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

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Re: Treatment Centers/Physicians

My tests and treatments have been at the Goshen Center for Cancer Care.

My surgeon is Dr. Daniel Diener. Dr. Richard Hostetter assisted with the diagnosing surgery May 29, 2007, and he will pray with his patients who ask him to do so.

My primary oncologist is Dr. Carol Westbrook, and I love her!

My primary radiation oncologist is Dr. James Wheeler, and Dr. Brown has assisted him. They are caring men who both go to my church.

Dr. Michael Hall did most of the stent work (I have a stent in each branch and 2 stents in the common bile duct.) He serves at several area hospitals, so he is only at the Goshen Hospital 1 day each week. Seems to be the way some of the smaller cities get quality doctors when the specialty is not commonly needed. He looks Doogie Howser young, so I was tickled to learn that he is older than my oldest kid. He's very good at what he does.

The Goshen Cancer Center has its own website, http://cancer.goshenhealth.org/main
listing all the cancer doctors there as well as other caregivers in the Cancer Center. They take a holistic approach, with specialists in naturopathic medicine, acupuncture, spiritual help, almost any approach you want to consider.

I have truly been blessed to find such excellent care so close to home. When the pathology report came back after my hysterectomy suggesting ovarian cancer, I was referred to Dr. Gini Fleming at the University of Chicago Medical Center. My oncologist sent all the reports for re-evaluation, and they confirmed that it was NOT ovarian cancer. So I saw a specialist (I can't remember his name right now) in the adenocarcinoma/cholangiocarcinoma family. I think he expected to see a tired, listless, aging patient but was pleasantly surprised that I had so much energy and good memory/understanding of my health as well as good questions. He suggested I go home and enjoy life! The U of C Hospital is a teaching hospital. I don't know why, but I was seen there and never ever saw any bill from them. My oncologist, Dr. Westbrook used to work at U of C and was good friends with Dr. Fleming. Whether I benefitted from their friendship or if that is the way the teaching college tries to work or what, I don't know, but if the cancer returns and clinical testing is warranted, I'll be back there. They have a deal with some of the area hotels for patients coming from out of town. Because the hospital initiated the reservation, my friend and I stayed in a very nice hotel in downtown, with a great view of the city for only $69 a night. That was about 1 year ago, in August 2008.

Re: Treatment Centers/Physicians

Marion,

My surgery was at IU Medical Center in Indianapolis Indiana (same as Amylea's mom).  I am 2 years 7 months out of surgery and doing well. Next CT scan is 09/18/09. 

My wonderful surgeon was:
Dr. Mary Maluccio
1001 West 10th St.
WD OPW 425
Indianapolis IN 46202
317-278-1531 (office)
317-274-7334 (fax)

I would definitely suggest she be on your list. Compassionate, caring and wonderful surgeon.

Thanks,
Sue

Today is a new day. Congratulations, you are already a survivor!

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14 (edited by betsy Thu, 01 Oct 2009 05:48:28)

Re: Treatment Centers/Physicians

My liver resection was performed at the Cleveland Clinic and my surgeon was and still is, Dr. John Fung.  He is the Department Chair of General Surgery at the Cleveland Clinic and was the former Chief of the Division of Transplant Surgery at the University of Pittsburgh.   For appointments the number to call is 216-444-3776.  http://my.clevelandclinic.org/default.aspx


Dr. Fung is a remarkable surgeon.  He took amazing care of me and got me through the darkest time in my life.  Although he would be totally in his right to have a huge ego, he doesn't.  Can't say enough positive things about him.

Just a note about the Cleveland Clinic....it is a HUGE teaching hospital so there are "teams" that take care of "pieces/parts" of a patient.  During my 21 day stay at the Clinic after my resection, I was really frustrated at the lack of communication between the teams.

Re: Treatment Centers/Physicians

My mom is being treated at Northwestern Memorial Hospital in Chicago, Illinois.

Talia Baker  - Surgeon
Mary Mulcahy - Oncology
Robert Lewandowski - Interventional Radiology


They've done a great job with my mom thus far!!!

Lauri

Re: Treatment Centers/Physicians

Mary's surgeon for her liver trisegmentectomy was Dr. Brendan Visser of Stanford.  Mary's oncologist is George Fisher of Stanford.  You can find them both by putting their names along with Stanford into your google search window.  It is actually faster than using Stanford's own search engine.

Re: Treatment Centers/Physicians

I was seeing Dr. John Keech as my oncologist here in Chico. He has relocated to Seattle. Terrific physician! I'm now seeing Dr. John Hayward.

My surgeon is Dr. Brendan Vissar (as well as the student community) at Stanford Medical Center.

Re: Treatment Centers/Physicians

In the Internal Medicine Associates my Dad nearly been treated by Richard Christopher, MD

Because he said that my Dad has a mental health problem.. another says none.


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Re: Treatment Centers/Physicians

My mom has been seen by - and is very happy with - Dr. Marschke in Fort Collins, CO:

http://www.frontrangecancer.com/bio_rm.php

She has also seen Dr. Alberts at the Mayo in Rochester and Dr. Eckhardt at the University of Colorado in Denver.

http://www.uchsc.edu/sm/deptmed/oncolog … khardt.htm


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Re: Treatment Centers/Physicians

Hi Marion,

Prof John Primrose works with CC patients at Souhampton General Hospital in the UK -

http://www.suht.nhs.uk/ContactUs/Direct … rJohn.aspx

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Treatment Centers/Physicians

My husband Tom has received his treatment at the James Cancer Hospital, part of OSU Medical Center in Columbus Ohio. His original surgeon and continuing care Dr. is Mark Bloomston. He is also seen on occasion by Dr. Tanio-Bekaii Saab. We have also gone to the UPMC Liver Cancer Center in Pittsburgh, Pa and seen Dr. Clarke Gamblin , basically for second opinions and possible liver transplant options. Based on a scale of 1-10 I would give all of them a 10.  Mary

Re: Treatment Centers/Physicians

Hi Marion,
Seeing these names and hospitals listed is helpful, especially for geographical guidance.
However, should I assume that people are sending in names ONLY if they were happy/satisfied with their experience??

Also, maybe only I care about this since my mother is stage IV (considered non-resectable due ONLY to bone mets & NOwhere else), but I also would love to know what type of treatment these gave, and what stage the cancer was, and how it worked out.
We are "beyond geography", hoping to find someone who is willing to take a chance with a very advanced but healthy patient by trying different things.

Diagnostic second opinions, pain management of bone mets, gall bladder surgeries, etc are all very different aspects that we could also be touching on, in addition to expertise in administering chemotherapy.

I am hesitant to even list my mother's physicians, as they have drawbacks in certain ways. But maybe I should, with a short description of our experience???

Please advise. Many MANY thanks for doing this and so much else!!!

23 (edited by mlepp0416 Wed, 03 Mar 2010 04:57:51)

Re: Treatment Centers/Physicians

My Husband Tom had his liver resection for CC at the Milwaukee VA Hosptial, Dr. Teresa Quinn was his surgeon.  She is awesome and came to the VA from Froedert Memorial Hospital in Milwaukee.  She has an extensive background in Liver Resections and Liver Transplants.  Somewhere down the line, another Veteran may find this useful.

(The VA uses the team approach and many if not all his doctors were from Froedert Memorial Hospital and the Medical College of Wisconsin)

His current treatment is being done at BayCare Aurora Hospital, specifically at the Vince Lombardi Clinic.  Dr. Nancy Davis is his oncologist.  Dr. David Rhodes is his radiation Oncologist. Dr. Dempsey is his Interventional Radiologist and Dr. Ravi Kondivatti is his Gastrointestional Doctor.  (All at BayCare Aurora hospital in Green Bay, Wisconsin)

I can't help but feeling that Tom is helping all these doctors learn about Cholangiocarcinoma and all of his experiences may be helping others that come down (in this area) with Cholangiocarcinoma.

Margaret

Re: Treatment Centers/Physicians

Although i was not the patient and i did go to every apt with my grandmother we went to Fox chase Cancer Center ( 333 cottman ave philadlephia, PA 19111) 215-728-2570. we saw Steven Cohen.

Re: Treatment Centers/Physicians

Margaret,
I do hope I did not come off as critical. I am just wondering how best to use these names. My mother's case does happen to be pretty "hopeless", so knowing more than just the name of the doc and the hospital would help. But I realize we are unique. We have not been offered much after quite a bit of searching. I really feel that having over 5 (my mother now has at least 40) bone mets is a death sentence, with chemo being the only option offered. But she is feeling quite healthy, doing 90 percent of what she wants. It is just so strange to think that she is going to die quite soon. That is why we have some cognitive dissonance- can't SOMETHING more effective still be done as all her functions are still very good???? Most of her body is successfully resisting this evil cancer.

Her first round of gemzar resulted in no side effects except for some fatigue, flat (still high) tumor markers, and a doubling of the mets in her spine from 20 to 40.
Everything else is unchanged. So she is on gem one week then gem-cis the next for 3 months, one month now done. Thankfully no side-effects except fatigue (quite remarkable.) No idea what else is happening, ie with the cancer.
Won't know for a while.
Supposedly, the primary tumor is not any larger than when diagnosed in early Nov 2009, however.
She has never had any symptoms of trouble with the bile duct or liver, etc.
She has had her radiation on one painful tumor in the neck area. The window for radiation on her spinal mets is closed (not sure why). She has Zometa every month with her chemo. That is all she is eligible for.

The big question is: would a doctor anywhere be willing (or legally able) to try anything else on her? Cyberknife is a tumor by tumor thing- she has too many in her spine for that. Local surgery would be a great option, if only she did not have the mets in her spine. She apparently has NO OTHER tumors, not in the liver, no where.


Anyway, we are making sure she is enjoying her life, is comfortable. We just feel so strange "giving up" like this. Our understanding is that a successful result on average with the gemzar is only a few extra months, hopefully side-effect free.

God bless all of you for your inputs, your listening, your advice. And may each of you find some light in your troubles.

Margaret, if you prefer to put this post on another board, feel free.

We even wonder if she really has cholangio- bone mets seem pretty rare, esp if there are no other tumors beside the primary. Or if she has two cancers. Anyway, the biopsies at Sloan-Kettering resulted in "probably cholangio/all same cancer". MRI shows her primary tumor is sitting on the central bile duct. The local doc is "assuming" it is intrahepatic. The only way they got cancer cells was with a needle biopsy- the endoscopic brushing on the inside the central duct failed, and the local doc thought it looked smooth- again not usual way cholangio presents, if accurate. I am now understanding that there are really no absolutely 100% certain diagnoses with cancer. Cell differentiation is the other factor. So that is it.




I will post about the docs she has seen next.