So, I'm going to set up a blog on Wellsphere under an anonymous name that my mother and neighbors won't be able to find. I just need some personal privacy. Not that a blog is necessarily private, I just can't handle anyone close reading my current deepest, darkest thoughts and commenting on them at church.
My cholangiocarcinoma family is always welcome to spy in on my nervous breakdowns, because I know each and every one of you have them too. We do have a connection that rivals blood. Dealing with this wretched disease does that. I'll share the address as soon as I know what it is.
Scott is 15 months post transplant. His last scan in February was clean but showed an aneurysm on the hepatic artery. They couldn't fix it and just tied the whole thing off assuming they would retransplant asap. But miracle of miracles, his liver has not died. So here we sit, dealing with annoying, but not necessarily life threatening things like ulcerative colitis and hemorrhoids. Things always feel as though they are on the verge of falling apart. Still, things are quite good with kids and a live husband and even normal life stuff. I am grateful for normal life stuff.
I've not forgotten you, just moved on a bit; lurking occasionally; happy and sad to see who is here and who is not. Grateful for your support and strength.
much love and God Bless,