Topic: Experiences with FOLFOX?

Hi - I might be getting FOLFOX soon.  Just wondering about others experiences with this regimen.  I'm anxious to know more about it.  Thanks.

- Suzanne

Re: Experiences with FOLFOX?

I have experience with the oxilaplatin in that combination. I just had a severe reaction to cold things. That is all. I know that on the cold cap machine at the hospital it gives instruction on how to use it with FOLFOX so it is possible that hairloss could be a problem.


Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Experiences with FOLFOX?

I'm just starting - had my first round on Friday - began with an anti-nausea drug, then Decadron (a steroid) to boost the anti-nausea drug.  Then oxilaplatin and leucovorin together followed by a 46-hour infusion of 5-FU.

I'd forgotten that the anti-nausea drug and the steroid wore off in about 48 hours and was wondering why I felt crummy - fatigue and nausea, and nothing tastes good.  That said, I'm still only 4-days from the beginning of the treatment and don't know how long I will feel like this.

I found walking helps relieves the nausea at least for a while.