Topic: Dad is coming home
Hi all -
I haven't posted in a while. Dad came out of the hospital after a 30+ day stay to go to rehab and get 'strong enough' for possible chemo. He left the hospital with two percutaneous bile drains. His diagnosis is bronchoalveolar carcinoma (rare type of lung cancer - and his is a rapidly progressing pneumonic form) and cholangiocarcinoma. This is made worse by his sudden chronic renal insufficiency. After 1.5 weeks in rehab, we went to the oncologist today and were told that there is nothing they can do for him. Nothing. No chance for chemo, radiation, experimental anything. He has decided to come home with hospice and make the most of whatever time he has left. We didn't ask how long he might have, and I'm glad they didn't offer any.
The worst part is that he really thought he was going to be told he was ready for chemo. He told me on Sat that he was expecting to hear that he is in remission. Such a disconnect. He was shocked, although he can barely even get out of bed and can only walk a few steps. He has lost at least 50 lbs in the last few months. And he was perfectly healthy as of July 4 of this year. His onc has done much research and found only about 100 other cases of people like him. No treatment was available in those cases either.
I don't know know what to say to him. It's so hard. At least he will be home after almost 2 months away.