Topic: Clinical Trials and expenses

http://www.cancer.net/patient/News+and+ … edications

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Re: Clinical Trials and expenses

I am interested in taking part in clinical trials relating to cholamgiocarcinoma
How do I become involved.

Re: Clinical Trials and expenses

Hello and a warm welcome.  I would start looking at this site and follow those trials actively recruiting patients.  You may find some to be accessible near you and you will need to meet the criteria such as, no metastases, etc.  You would also want to discuss this with your physician.
http://clinicaltrials.gov/ct2/results?t … ocarcinoma
Please, stay in touch as we will gladly help you with any questions.
Best wishes,
Marion

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Re: Clinical Trials and expenses

Thank you for this information regarding clinical trials

Re: Clinical Trials and expenses

Pat...you are more then welcome.  Have you been able to locate anything of interest to you?
Best wishes,
Marion

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Re: Clinical Trials and expenses

Hi Marion not yet located any clinical trials yet.

Regards

Patrick

7 (edited by marions Mon, 26 Oct 2009 19:19:16)

Re: Clinical Trials and expenses

Hello Patrick.....all clinical trials should be listed (and hopefully, are) with clinicaltrials.gov.
Here is a sample of what I have been able to pull up.
http://www.clinicaltrials.gov/ct2/resul … uct+cancer
Good luck, Patrick.
I am attending a workshop on Cancer Clinical Research and will add another posting where I will share some of the information I have received.
Patrick, please reach out.  Gladly, I will help you.
Best wishes,
Marion

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Re: Clinical Trials and expenses

Dear Patrick....I read through you previous posting and realized that you had a liver transplant 10 months ago in Dublin.  I am wondering as to why you are interested in a clinical trial. 
Best,
Marion

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Re: Clinical Trials and expenses

Hi Marion,

The reason I was enquiring about clinical trials is to see if there any new treatments in the pipe line that may reduce the risk of the cancer returning.

I have been advised that even though I have a transplant there is always the risk of me getting cancer again.This is just one medics view on this subject.

In the last two weeks I have learned that one of the patients who was in hospital with me died after cancer returning.He also had a successful liver transpalnt last year.

Regards


Patrick

Re: Clinical Trials and expenses

Dear Patrick....I do not know of anything relating to a reocurrence post transplant.  I don't know whether any statistics exist.  But, I will try to find out as much as possible.  Please, also share with us whatever you may learn.  Others on this board have had a liver transplant and hopefully, they are able to chime in on this conversation.  How are you feeling?
All my best wishes,
Marion

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Re: Clinical Trials and expenses

Patrick and Marion,
Pub Med has an abstract on stats after transplant.

I'm computer illiterate when it comes to links, etc.. so I can only provide you with the name of the abstract. Hopefully one of you can pull it up and link to to the board?

Thanks
Ashley

"Predictors of disease recurrence following neoadjuvant chemoradiotherapy and liver transplantation for unresectable perihilar cholangiocarcinoma"

Re: Clinical Trials and expenses

Thank you very much, Ashley.  Are these the links you are referring to?

http://www.gastro.org/wmspage.cfm?parm1=7939
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2504373/
http://cme.medscape.com/viewarticle/702031_3

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Re: Clinical Trials and expenses

Marion,
Yes, thank you. Basically 15-17% chance of recurrence after transplant.
Ashley

Re: Clinical Trials and expenses

Hi Marion/Ashley

Thanks for this will advise any other people interested.

Regards

Patrick