Topic: mum just diagnosed with cc thought she had eaten a dodgy sandwich
Hi 3 weeks ago my mum was diagnosed with nonresectable cc. Well they think it is cc. The Dr. said that this was the most likely diagnosis. he said they couldn't tell for sure unless they did an autopsy!
my mum lives in Leeds and I live in Northern Ireland. Mum told me one night when we were talking that she felt a bit unwell and put it down to a dodgy sandwich. I told her to go to the Dr. which she did. The Dr. told her she was jaundiced and said he would write a letter to the hospital for them to make an appointment to see her. This would take about 2 weeks. My daughter also lives in leeds she is a teacher. She called me to say that mum was really yellow and I told her to take her to A&E. They admitted her and that was the beginning of the nightmare.
Firstly they told us it was a blocked bile duct caused by gallstones. At least that was treatable we thought, we were relieved. An Endoscope was performed and low and behold no gallstones, well actually lots of gallstones but none blocking the bile duct. More tests were ordered. After Cat scans and Mrsi scans the Dr. called us into a side room to break the news. We all held hands and walked together into the room wheeling the drip stand my mum, my son and my daughter. I was in Leeds by this time armed with my list of treatments fresh from the internet. "Don't worry mum I have lots of things to ask the Dr". I said to try and reassure her.
He drew a diagram of the biliary tree and put circles all around this area. "You see it is so agressive there is nowhere to do a stent." I showed him my list and he shook his head. "Not possible", he said the cancer had metastesised. I had never heard this word before and still can't say it let alone spell it. IT is in the lung, stomach, liver and pancreas. Wow, mum you don't do it by halves. My very courageous mum squeezed my hand and said don't be sad I don't want you to be miserable I am not going to be.
To crown it all my brother came on the train from London and ended up in the ward next to mum on a drip with gall stones. He has to get his gallbladder removed now.
My mum is at home now receiving palliative care which has been excellent I have to say.
She has no pain and a part from being bright yellow and very very tired she doesn't feel to bad. Her optimism and zest for life is inspirational. On her first day home the wheelchair arrived. Mum has asked ot go out nearly every day since. We have been to the royal armouries, the Whiterose centre and Ripon Cathedral where a lovely canon gave her a guided tour and also communion,
My Mum is an intelligent creative lady who has inspired many people in her life. She writes poetry and short stories. She did a degree in her sixties for fun.
Everyone wants to visit her and this is quite a task to manage as relatives are travelling from Ireland.
I have gone home for week as my husband is ill he has a heart condition and was in hospital when mum was diagnosed. He is home now.
I am flying back on Friday for the weekend. I want to be with mum all the time but what do I do? I am very confused and still don't really belive my mum is going to die. They said weeks to early months what does that mean? Mum hasn,t asked.
Thankyou for listening xxx