Topic: I can hardly believe it myself!

Well, I haven't posted in a while but I do want to share my good news, hopefully it will be good information for others on this site.

I found out today, with amazement, that there are no active tumors in my liver!  As I type it, I can hardly believe it!  To get to this point, I have had a liver resection in February, multiple rounds of cisplatin/gemzar, radioembolization in August of this year (which is now considered a success), and 3 rounds of FOLFOX6 chemotherapy.  There is no 100% way to know if one or the other did the trick or if it's a combination of both.  I will continue with the FOLFOX chemo until, well I don't know yet.  But I will get another PET scan in 3 months.

I just want everyone to know that there is definitely hope to be had.  I know this doesn't mean I'm cured but maybe I can relax a bit and enjoy, really enjoy, my life without as much anxiety and worry as I have had for the last year (my husband and family too!).

This site means so much to me, and gave me hope when I needed it the most, and continues to give me so much knowledge and support.  I only hope that I can give back as much as I've received. 

Keep hope!

- Suzanne

Re: I can hardly believe it myself!

Congratulations! Your post provides so much exciting hope!

Re: I can hardly believe it myself!

Suzanne that is the most stupendous news! You have just given a whole planet full of hope to everyone! What a Holiday gift for yourself and others. Really, what else can one say. It's just the best news in the world. Relax and enjoy! Did you hear that awful sound? It was me cheering;) smile smile

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: I can hardly believe it myself!

Suzanne....thanks for sharing this.  I remember when you had the resection and your sister staying in touch with the members on this board.  What a joy it was to hear about your recovery from surgery, and now this fantastic news.  You are giving hope to many of us.  Nothing beats a success story.  Congratulations.
I wish for a long, relaxing time for you.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: I can hardly believe it myself!

That is amazing news Suzanne! Congrats!

"Love is like the wind, you can't see it but you can feel it"

Re: I can hardly believe it myself!

Suzanne- I can't tell you how very happy I am, elated to hear your fantastic news. You have been fighting so hard, your news is the best and I know this will be a wonderful holiday full of hope and the good things that will come your way. Kim thinks the world of you, I can't wait to talk to her about your awesome news.  she is at emory and just head her RFA today ( it went great I am told, better then expected), so good news all around for you  two beatiful Georgia gals.... Love to you and your family, now have some fun.

Re: I can hardly believe it myself!

Suzanne,
I am so, so happy for you. I have been worried because I havent seen you around, you naughy thing! You have given me so much hope. Thank you. Now enjoy some time with the family. You have some much to be thankful for...seems perfect that Thanksgiving is next week.

And foodie...step back. Suzanne is a South Carolina girl. You just cant go around claiming all the good ones for Georgia. Thats called greed. smile

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: I can hardly believe it myself!

suzanne,
absolutely terrific news!  great to hear!  in aug you had more than 20 tumors show up........... this is as good as it gets.  YAHOO!

lwith love,
barb h

Re: I can hardly believe it myself!

Suzanne,

That is great news indeed! Thanks for sharing it with us. I hope you can indeed try and relax a bit and enjoy life with your family.

Best wishes

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: I can hardly believe it myself!

Wonderful news! Makes for a great holiday!!! Keep it coming!
Ashley

Re: I can hardly believe it myself!

That's SOOOOO wonderful, Suzanne - thank you, thank you for telling us.  It gives me hope!!

Have a wonderful Thanksgiving.

Julia x

"Time may be a great healer, but it's a lousy beautician."

Re: I can hardly believe it myself!

Suzanne,

Great news!! Have a wonderful Thanksgving

Katie

Re: I can hardly believe it myself!

Thanks to everyone for all your great responses and support!  My plan is to continue with chemo but hopefully in Feb or March stop chemo long enough to have my hernia operated on.  I call it my "alien".  It's so huge I had to get a girdle type garment to keep people from running and screaming in the other direction hoping nothing will pop out and get them!  (sounds gross right?)  Has anyone else had a large hernia operated on with success?

- Suzanne

Re: I can hardly believe it myself!

Yes, Suzanne.  My husband had a  hernia repair and I remember Peter talking about it also. Both were substantial in size and both were successful surgeries.   
Best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: I can hardly believe it myself!

i think sue also had a hernia surgery

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: I can hardly believe it myself!

I have never written on a message board before.   But with the coming Thanksgiving holiday, I offer this single post as a testimony to my thankfullness. 

In January, 2007, my wife, my whole reason for living, my soulmate...was diagnosed with intrahepatic CC.  She was 42 then.  This happened in a small hospital in Wheeling, WV.  We transferred her to the Cleveland Clinic, Cleveland, OH. Unbelievable care there. A surgeon who appeared young enough to be our son was assigned to her case. To him I will be forever thankful.

I had done all of the internet research. I had viewed all of the grim statistics. I had held her hand and encouraged her all that I could. I suffered the pain that many of you now feel.

Long story short....9 hours of liver resection surgery and 2 years & 9 months later, she is healthy and cancer free.  I can barely believe it myself.  And her? Well.....it's strange, really.....cancer is not even a thought.  It's as though it never happened.  In fact, we have to almost remind ourselves what we've been through.

I cannot pray enough for all of you who's lives are touched by this madness. Please know, though, that there is hope. There is light to be sought. Do not give up for yourselves or your loved ones.  Love those who are dear to you today, for tomorrow is uncertain.

Re: I can hardly believe it myself!

Dear JNORM, what an absolutely wonderful post and how fitting for the week of Thanksgiving. This is the kind of post that we love to see as it gives hope and encouragement to everyone. Have a stupendous Holiday. Stop in anytime.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: I can hardly believe it myself!

Thank you, JNorm!!  My very best to you & your wife.

"Time may be a great healer, but it's a lousy beautician."

Re: I can hardly believe it myself!

JNorm,  Thank you for a wonderful encouraging post especially at this time of year.  My best to both of you.  Happy Thanksgiving. Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: I can hardly believe it myself!

Suzanne,
I am new to the board, and don't know you at all, but I am so truly happy for you. 
Feel great and looking forward to hearing  more wonderful news from you in the future.
Best Wishes,
Dawn

Re: I can hardly believe it myself!

Hello Suzanne,

I'm so happy to hear your good news.   I was diagnosed 11/08 and have had a resection as well as 2 treatments of Therashpere.   I go 12/18 for a CT scan and then see the Dr. on 12/22 to see what the treatments have done.   I'm sure I will still have to be on some form of chemo.   What were your side affects ofFOLFOX6?   I have not heard of that.   Did you lose your hair?   I have been on gemzar but not in combo with cisplatin.   

One thing for sure, the anxiety and waiting for the next text result are torture.   How does one relax???

My prayers are with you.   I hope you have a wonderful Holiday.

Suzannegm wrote:

Well, I haven't posted in a while but I do want to share my good news, hopefully it will be good information for others on this site.

I found out today, with amazement, that there are no active tumors in my liver!  As I type it, I can hardly believe it!  To get to this point, I have had a liver resection in February, multiple rounds of cisplatin/gemzar, radioembolization in August of this year (which is now considered a success), and 3 rounds of FOLFOX6 chemotherapy.  There is no 100% way to know if one or the other did the trick or if it's a combination of both.  I will continue with the FOLFOX chemo until, well I don't know yet.  But I will get another PET scan in 3 months.

I just want everyone to know that there is definitely hope to be had.  I know this doesn't mean I'm cured but maybe I can relax a bit and enjoy, really enjoy, my life without as much anxiety and worry as I have had for the last year (my husband and family too!).

This site means so much to me, and gave me hope when I needed it the most, and continues to give me so much knowledge and support.  I only hope that I can give back as much as I've received. 

Keep hope!

Re: I can hardly believe it myself!

Hello Suzanne,

I'm so happy to hear your good news.   I was diagnosed 11/08 and have had a resection as well as 2 treatments of Therashpere.   I go 12/18 for a CT scan and then see the Dr. on 12/22 to see what the treatments have done.   I'm sure I will still have to be on some form of chemo.   What were your side affects ofFOLFOX6?   I have not heard of that.   Did you lose your hair?   I have been on gemzar but not in combo with cisplatin.   

One thing for sure, the anxiety and waiting for the next text result are torture.   How does one relax???

My prayers are with you.   I hope you have a wonderful Holiday.

Suzannegm wrote:

Well, I haven't posted in a while but I do want to share my good news, hopefully it will be good information for others on this site.

I found out today, with amazement, that there are no active tumors in my liver!  As I type it, I can hardly believe it!  To get to this point, I have had a liver resection in February, multiple rounds of cisplatin/gemzar, radioembolization in August of this year (which is now considered a success), and 3 rounds of FOLFOX6 chemotherapy.  There is no 100% way to know if one or the other did the trick or if it's a combination of both.  I will continue with the FOLFOX chemo until, well I don't know yet.  But I will get another PET scan in 3 months.

I just want everyone to know that there is definitely hope to be had.  I know this doesn't mean I'm cured but maybe I can relax a bit and enjoy, really enjoy, my life without as much anxiety and worry as I have had for the last year (my husband and family too!).

This site means so much to me, and gave me hope when I needed it the most, and continues to give me so much knowledge and support.  I only hope that I can give back as much as I've received. 

Keep hope!

Re: I can hardly believe it myself!

Hi Suzanne,

Somehow I missed your original post.  I too am so happy for you and hope things keep going well for you.   All my best to you & your family.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: I can hardly believe it myself!

Fantastic news Suzanne!

Carol