Topic: Loose Leaf Notebook

We wanted to let everyone know that Rick has added a new link under the "Foundation" section of the website.  This link is for our Loose Leaf Notebook, where we will periodically post updates so that you can follow our activities.  We have a very busy year in front of us, and we look forward to sharing the progress with our family here.

Hugs to you all.

30-something caregiver

Re: Loose Leaf Notebook

Thank you to the Foundation and to Rick for all your hard work. I just read the Loose Leaf Notebook and it was excellent. How can we miss with so many working so hard. Someday soon the whole World will see it too!

Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Loose Leaf Notebook

Hi Sara,

Thanks for that and for letting us know about the new link. And thanks to you, Rick and everyone else for all your efforts here. I look forward to reading the new section and following all the activities and also to the progress and a busy year!

Best wishes to you all,


Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.