To all who have lost there loved ones. I lost my mom Sept. 09 who was also diagnosed with cc in just March 09. They had wanted to call in hopice then, because of it's rarity, but no way would I let them. We searched everywhere. The rare treatment of Cyberknife near Atlanta became the only opp. which gave us 6 extra months.
Don't let the unknown Doctors who have never heard of cc tell that there is nothing they can do and just give up. Yes there is always hope, even if for only for 6 ?? months.
I did not let them no hope people tell my mother. She would have given up then. Yes there is some hope, if only for a littlewhile. This is a fast form of cancer true, but they come up with new technoligy everyday. Oh how I wish sooner, but to those who are still here pray.
My mom was strong, hopeful, a loving mom, grandma, wife and was never a quitter. Until late August, she went to those doctors who didn,t have a clue about cc. It was then that they told her there was no hope and seriously told her to just go home. Because of there ignorance, I lost her less than a month later.
Since, there is no day that goes by that I don't think of her, even to the extint of calling for help. Then to remember she is gone. I miss her more than my own life. Selfish, no. Mad yes.
Never let the doctors tell any of you that are caregivers or have cc, a daughter, son,wife/husband that there is no hope. Lets just keep praying for that new technoligy. A way that they can detect it sooner. Anything.
My moms battle is over, but I will keep everyone in my prayers for that hope.
To the ones that have already lost, my heart goes to you. The saddest words in the vocabulary(if ony, or what if) I think of those words everyday.
The pain for her is now over, but the pain in my and I am sure your hearts will last until we see them again.
For the ones still fighting the battle don't give up.