Topic: Looking for a specialist in California for cholangiocarcinoma
I was diagnosed with bile duct cancer in July, '09 and they said I could not have surgery so chemo and radiation were my only options. I have a mesh wall stent in one of the ducts. I have had 6 weeks of chemo (gemzar) and radiation. The CT scan showed that it has not shrunk nor has it grown. While I was taking the treatments, my CA-19 got as high as 5800 and then started coming down a little. The last blood test showed the CA-19 was down to 2000. I hope it wasn't a mistake. It is still very high but lower than when I started the treatments. Now, it is time to have more chemo and I am hoping to find a doctor that is more familiar with the bile duct cancer than the one I have been going to. If you can help me find a specialist, I would appreciate it. I have sent my records to Dr. Venook who is at UCSF but I do not know anything about him except what is on the internet. I have asked for an appointment but they haven't given me one, yet.