WEll, my last post was about my uncle having had his surgery. The surgery was very difficult but the surgeon accomplished what he intended even though it took 11 hours. I think the added complication was that the cancer had spread to his lymph nodes. After 3 weeks he is now back home. His billirubin level has been up and down, his last count was just above 200. The bile is draining in to the bag but wont be sure whether the level is decreasing until his next blood test. We are now realyl very worried about this as its that the consultant cannot do anymore evasive treatments to help this. He will be going back to Leeds for his follow up next Friday - my uncle's not looking forward to the journey as it is around 2 hours in the car and each time it really takes its toll on him. I'm not sure whether we should ask for hm to be referred back to Birmingham. The problem is that we trust Dr Raj Prasad - he's been briliant so far. Now if he's referred back who knows what kind of care he will get.In the mean time my uncle has been feeling very sick - and was vomiting yesterday. I hate to see him so utterly helpless. Like I said he's such an active person, and a hands-on dad.
We've also found an oncologist who speciallise in chinese herbs. Ive had a couple of chats on the phone with him and feel confident in letting him treat my uncle. He was recommended by a friend of a friend who also had cancer- Anyways this person John Hall from 'East meets West' has helped with with their quality of life and prolong peoples lives. He is one of four who practices in a way which ensures the eastern medicine is complimentary to the western medicine. He has a database of all the herbs he uses and their chemical reactions etc. Again the distance will be difficult - he is based in Norwich which is a good 2+ hours away!! And he'll probably require to see my uncle at least every 2 weeks in the beginning.
Its just so hard seeing him like this. Yesterday he didnt even wnt to talk to any one on the hone as he just felt so sick and felt he didnt have the energy. Emotionally he has been very down, I just hope he's not loosing faith as I know its on a very difficult ride.
We're also not too sure about what to do with his diet. Before CC he was on glutenfree and dairy free diet as he has ulcerative collitus. This has been hard to sustain b/c of his loss of appetite. He is having freshly queezed carrott juice and other fresh juices. And is drinking his forti/nutri-juices. We just dont know what to give him as we dont wnat to further uset his stomach!
We just feel very confused.
Any advice is appreciated xx