Dear Jules & Patricia-
My oncologist is not that keen on chemo, either. My surgeon, as well, told me that the response rate is only 35% at most, but then again, someone has to be in that 35%. As chemo is my back-up plan, I'm anxious to hear other's experiences, but I'm not that crazy about going through it. Jules, I think your father really needs to see that cc specialist in London, because he may know much more than just a general oncologist. He may be more familiar with the subtleties of the various chemo drugs and using them in combination.
By the way, I had a couple of English ladies in my bookstore yesterday who said good things about Marsden. Also, I have a friend visiting from Denver whose friend Martha loved her oncologist and was very disappointed when he left the Denver area to come to the western slope of Colorado, my side of the state. Turns out I have her friend's oncologist.
Patricia, have you heard anything about glutathione? I was supposed to start on it, but postponed it when I applied for the clinical trial for sorafenib. (I haven't received final approval, but I was told this week that I have been accepted. And I got great news yesterday that my insurance company will pay for tests associated with being in the clinical trial.) I also take other supplements and was on large doses of vitamin C, but my oncologist said the vitamin C may actually promote tumor growth in that it removes the waste of tumors and makes them grow more quickly. Have you heard anything about that? I'm going to ask the clinical trial people if it's okay if I do the glutathione while on the sorafenib. Glutathione is supposed to very beneficial for the liver.
As for me, I'm feeling good and have lots to engage me, although I do get tired in the evening. Very busy weekend. Another set of friends coming in today to cross-country ski. It's been snowing cupcakes so they will have great conditions. I have to work mornings in the bookstore and have my oldies radio show tomorrow afternoon. I'll think of you when I play some British invasion music. We are hosting a couples book club Sunday night, so I must clean my house. I have been practicing the flute and pennywhistle to perform some Celtic music next weekend for St. Patrick's Day. Our band is not so good, but up here in our little hamlet in the mountains, no one is that particular. They just want an excuse to drink green beer, eat corned beef and cabbage, sing some drinking songs, and do a jig. But the big thing coming up for me is that we'll be driving to Dodge City, Kansas next week so I can start on the sorafenib. Keep your fingers that the drug works for me.