Topic: Photo Dynamic Therapy (PDT) Personal experience
I have been treated w/PDT 3x in the last year at the Mayo Clinic in Minnesota
If you are a canidate, it starts with an injection of photofrin, 2 large syringes.
This happens 3 days before the actual procedure so the tumor cells have
time to absorb & retain the photofrin. Normal cells do not retain it and it passes through the body slowly being eliminated through the skin over the next 6-8 weeks. Light sensitivity is the side effect of the photofrin. You have
to be covered up. Sunlight, Daylight and incadescent lights are the biggest
problem with burning. Especially the first 3 weeks. Just a few minutes can
mean skin burn, eyes too. I have had some slight burns and have taken Benedryl to help with the itching and pain. I have heard of some very bad
burns so I don't gamble at this. The procedure is about and hour and they
burn off some of the tumor and place a temporary stent in the bile duct.
The stent is plastic and lasts 12 wks. max, 5 wks. min. at least for me. I also
take 2 weeks to recover from the procedure. There is some pain which drugs always help and sometimes I need help sleeping too during recovery.
If anyone wants to know more, feel free to ask. I thought I would just share my experience. I was diagnosed 11/14/08 and am happy to share with anyone.