Topic: Swissgirls Dad-Unexpected Diagnosis

Hello all,

I wanted to give you an update on my dad.  He's back in the hospital cause he can't keep most of his food down-the doctor just wants to make sure he is kept hydrated and keep any infections at bay since his white count is a little elevated. 

The good news (or should say strange news) is that he has been diagnosed with endrocrine carcinoma - non functioning.  They say this is pretty rare. Even though it went into 3 of 5 of his lymph nodes they believe they got it all and he will have a better than expected prognosis.  He will be getting chemo, but not sure if it will be an oral med.  The surgeon believes that the treatment is relatively begnin.  I haven't found a lot on the net about this type of pancreatic cancer.  Any suggestions?

I've tried the USC site which has there treatment options in surgical terms, but not much on the chemo part.  Any help will be appreciated.

Thanks again for all your well wishes.

Re: Swissgirls Dad-Unexpected Diagnosis

Hi Swissgirl. I know nothing about endocrine cancer. But I am confused is this in addition to cc or instead of cc?

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Swissgirls Dad-Unexpected Diagnosis

Hi Kris,

As it turns out he didn't have cc but a rare form of pancreatic cancer that invaded (blocked the distal bile duct).  Even after surgery, the surgoen thought it had to be cc. 

Swissgirl

Re: Swissgirls Dad-Unexpected Diagnosis

Swissgirl....John Hopkins has a pancreatic discussion board something, you might want to take a look at. 
Best wishes,
Marion

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