justine, i fought blue cross and eventually was able to get approval for avastin. just when i got approved for the next round 'we' decided to stop treatment for awhile. however, i was helped by the california state department of insurance. i sent them a huge file of rejection form letters from blue cross and details of my ongoing battle with cholangio. also, i was able to receive some avastin through 'single point of contact' in that i qualified due to financial parameters.
i enlisted everyone's help that i could think of for my fight. several nurses at norris cancer center (where i receive treatment), my oncologist, my husband's work, me making endless phone calls and letter writing and threatening to contact a lawyer. it was a longgggggggggggg battle and very stressful, but if eventually paid off. i'm still alive after 7 years.
due to many other stresses in my life, i do not come here often, but i will try to check back here for the next week or so in case i can be of any assistance. also here's a phone number for the nonprofit patient advocate foundation
800-532-5274; www.patientadvocate.org. plus other possibilities are:
www.healthinsuranceinfo.net for guides for each state; www.naic.org is the national assn. of insurance commissioners.
i also have a bunch of word files with info that might be useful. if you would like them just post an email address and i will flood you with that stuff. it's not well edited sooooo, it might be a bit overwhelming to get through.
wishing you the best,