Topic: TEDDY'S UPDATE
Me first! Mine is simple. I am doing great. ONC is watching closely because if a GIST tumor is to return it usually does it with in the first couple of years after surgery. PET Scan in June and that's it.Oh, Colonoscopy again in October.
TEDDY: First I told the ONC about the visit to the Radiologist and how unhappy I was and he agreed may be time to change. I found a super Radman who has seen T twice before when he was wearing a "drainage bag' we liked him and he is at our hospital...no more running downtown. The ONC thinks it is a great choice.
There are 2 tumors. One is 3CM and is at the upper right curve of his colon. A PET Scan only shows hot spots, it does not define so they are not sure if it is in the colon or on the outside.ONC is ordering a CT Scan with contrast which will define them.This tumor has grown from 1 CM to 3CM since found last Fall. Second tumor is near the right kidney and is the same size, 3CM but has not grown from the last PET Scan.
He is also ordering a Colonoscopy to make sure nothing is going on inside the colon. Lastly, T has been complaining of a pain in his right hip in the bone. He will be getting a bone scan to make sure bones are A OK.
I would think these 3 tests will be done in the next week or so, this ONC does NOT waste time. In the meantime any doctor who sees T cannot get over how good he looks and generally feels. His next visit is in May to go over the tests. Then I am hoping a game plan will be set up.
It is not the news we wanted but we did expect it. I always say we remain Realistically Optimistic.
So that's my story and I'm sticking to it! I guess my gut was right in telling me that something was going on, but its all small enough to be handled, we hope. Tomorrow, a Kentucky Derby party in Tucson!
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.