Topic: Concerned daughter with questions

Gallbladder cancer can make you feel so alone...so what a relief to have found this website. My mom, age 60, was diagnosed after gallbladder removal in March '07. She was asymptomatic, as are many other patients, but it was classified as Stage IV. The only known area it's gone to are her lymph nodes in her stomach...but as one lovely nurse in the hospital said "It's going to go everywhere. There's nothing you can do." I'm 26 yrs. old and felt like our family was cursed. But I've read many of your stories and now I'm starting to feel lucky...many people don't live long past diagnosis. So it's been 4 months and six weeks post-Xeloda and radiation, her CA-19 marker continued to decrease. We're in a dilemma right now...would love some advice from anyone...she began infusion therapy this week...she's taking Gemzar once a week for three weeks, one week off and cisplatin once every three weeks. We've read HORRIBLE things about cisplatin. She's really healthy (as healthy as one can be with this disease) and I'm afraid this will start a downward spiral for her. We're debating on whether she should already stop the cisplatin before the severe side effects kick in. Should we quit while we're ahead? Her quality of life is great so far but who knows. Or maybe she could try a different "platin" drug like oxyplatin? Thoughts? Thanks in advance!

Abigail

Re: Concerned daughter with questions

Hi Abigail,
I have my father, 60, which is quite in the same situation of your mother. He was diagnosed with intrahepatic cholangiocarcinoma at the end of June. Unluckily my dad can not be operated because the cancer has taken most of the liver. Even my dad was asymptomatic and now that is having chemo is ok, no pain, so particular side effects.
Doctors say there is nothing to do but I'm fighting to try everything to keep my dad alive.
I have found a chemist in Swiss and now my dad follow this particular macrobiotic diet. In 3 weeks, cancer markers and liver blood test (which were 6 time the normal value) are getting normal. That's because this kind of diet eliminate all the toxic substances that are present in  the chemo or other therapy and want to clean the organ.
I don't know if it can be helpful for your mum, but maybe you can try.
The diet is in the Nutrition area, at the top. My nickname is Koalino71.
I wish you all the best!

Laura

Re: Concerned daughter with questions

Thank you so much Laura. My mom really believes in the influence of good nutrition on cancer.

I had a question about a couple of things on the nutrition list...did the doctor say or do you know why eggs or green tea would be things not to consume? Those are things my mom eats/drinks pretty frequently.

I completely understand wanting to take matters into your own hands, especially when doctors say there's not much else they can do. I'm glad that your dad is responding well and hope he continues to do so.

Have you guys thought about Iscador, the mistletoe extract? I've read some good things but it's not approved here so...
Noscapine is another easily accessible drug in Europe that has been suggested with very little side effects.

Abigail