Did you ever get any info on this? I am interested in doing a golf tournament. I think that should be pretty easy to set up, but we're not sure what to do with the money. We want to make sure that it goes directly to cholangio research.
Brian and Angela....thanks for your great idea. It comes at the perfect time. The Cholangiocarcinoma, in cooperation with the National Cancer Institute, will be offering a grant for research on Cholangiocarcinoma by the end of this year. More information will be posted within the next few days. I also wanted to mention something you might not be aware of. The Cholangiocarcinoma Foundation is staffed by volunteers only. The work we do truly is an act of love solely. focused on helping patients touched by this disease. Unlike many other Foundations salaries are not paid to any of us. Our ultimate goal is to help researchers find a cure for this disease. You might want to send an e-mail to Stacie regarding your great thought of a fundraiser. She will be happy to help you. Best, Marion
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
We are happy you'd like to do a fundraiser. We just updated our site with information to help you and others. Just click on the "Get Involved" button and "Local Fundraisers". If we can be of assistance, let us know.