Topic: I am so frustrated with this DRAIN!
After six weeks and four different drains from two hospitals, my external drain is STILL a mess.
The hole is still leaking like mad (I have to use 5 gauze pads plus a surgical dressing, and change the whole nasty mess multiple times a day), there are days when I have agonizing, stinging pain every time I move (like yesterday), and the stitches keep slipping into and out of the hole. I can hardly leave the house. I've wrecked half my clothes with bile stains. I am so so so sick of this! And the last time I went to have it checked, 2 weeks ago, the doctor said that was "the best they could do" and I'd just have to live with it. Please tell me that isn't true... At least that pain can't be normal, can it? Even oxycodone doesn't touch it.
All I want in this world is to go up to Wisconsin and visit my family and see my Grandma (who is 100, and the dearest person in the world to me) before I start chemo. But the way things are, I can't even go to the grocery store.
Has anyone had trouble this bad with an external drain and finally had it work OK? How did they fix it? The bile is draining into the bag just fine and I've gotten a lot of relief from my symptoms, but the rest of it is just misery.
Thanks for listening! I hope you're all having a better day.