Hi! Caroline Stoufer of Colorado here. I've been really busy with the summer season in our tourist town, that I've just been blogging. and hadn't had time for the discussion group. Also my new chemo regimen can really knock me out which means I can't do as much work. But I'm back!
I am on FOLFOX and have been for 9 treatments. It seems to be working as my last two CT scans this summer show the 12 tumors in my liver as stab;e. A good friend of ours with colon cancer did it for six ttreatments and was pronounced stable. FOLFOX does take it's toll on the soft tissues of the head.l I have a huge hole in my septem, my esophagus gets sore and I drink aloe juice for that. I worry that it's killing brain cells and I seem to have chemo brain a lot. I have side effects for which I take a multitude of rx drugs and vitamins. Anyone out there done SIRT spheres? I'm looking at this treatment for down the road. I found a really good doctor that does it.
All for now. Hope everyone is doing as well as can be expected. My prayers are for all of us and our loved ones and caregivers.
Sincerely, Caroline Stoufer of Ouray, Colorado
PS I did the Sorafenib trial in the spring of 2006, but it didn't work for me. Good luck to those of you giving it a go. Stay out of the sun which can aggravate it.