Topic: My dad just diagnosed
My dad (69) was just diagnosed with intrahepatic cholangiocarcinoma. We learned at Mayo Clinic Tuesday that the entire left lobe of his liver is taken over by a multinodal mass, and there are 5-6 masses in his right lobe. There is some evidence of lymph node involvement, and there are masses on his adrenal gland that may or may not be cancer also. The surgeon at Mayo (Dr. Nagorney) told us it is inoperable, and that chemo in 7 of 10 cases would not have any positive effect. I've been readintg a lot of the family blogs here, and I don't think my dad is emotionally or mentally capable of handling chemo. He is not in any pain, but is very fatigued at times. His appetite is down, and he has lost about 30 pounds over the past 4 months or so, although he also had pluersy and food poisoning during that period. The doctor said he has between 6 and 12 months left. He also has Type II diabetes.
My mom and I don't know what to do next. My dad has decided not to do any chemo, which we think is the right decision for him. He still has a relatively normal life right now - he can drive around town, take care of himself, and even goes to the gym. He doesn't want to spend the last year of his life sick from the chemo.
This site has been such an enormous help to me - I am so grateful to all of you for it. My mom and I are wondering, since my dad is not going to do chemo, what to do next. Should he see his regular doctor to monitor the cancer, or a gastroenterologist, or an oncologist? Should he have more tests/scans done periodically even with no chemo? Is there anything else we can do to make sure he is pain-free and living a relatively normal life as long as possible? What is the progression of this cancer like? Are there any family blogs for people who have chosen not to do the chemo? Any insight you all could give us would be enormously helpful. Thank you.