Topic: another one just diagnosed
Hi all, my name is Barb and I too have just been diagnosed with CC. Well, actually they haven't decided if it's CC or Pancreatic, the liver guy says CC, the oncologist agrees but also says that there are a lot more treatments out there for Pancreatic so it won't hurt to explore everything. My main tumor mass is a "gamish" of stuff that doesn't seem to match anything, lucky me. The mets in my liver is extensive, many many little tumors, which makes theraspheres an unlikely prospect, but my liver guy is trying. I also have extensive lymph node involvement. Funny thing is that I just had my gall bladder out last November, not a sign! I was diagnosed a week ago, came to the ER on the 8th with vertigo and nausea of all things, I just thought I needed to tank up on IV's and I would be fine. Those were the only symptom, I can't even claim weight loss, well, not until the last couple of weeks. Even when my lft's came back all out of whack everyone thought it was just an errant stone that got stuck in the bile duct. The panic came when the CT results came back, and then my tumor markers came back in the 700's (normal is 18-22), and then the final blow was the liver biopsy results. So now I am here with this rare (excuse me, I prefer the term "designer") cancer, inoperable, incurable. I start Gemzar on Monday, I just had my portacath inserted on Thursday. I am also on Tarceva, it has shown promising results for pancreatic cancer patients, and as my oncologist said, it couldn't hurt, and it might help.
This whole thing just sucks. I am 52 as of yesterday, a single mom of a 10 year old son whom I adopted just 5 years ago from Guatemala. How unfair life has been for my little guy, he had a horrible life until I adopted him, he has been diagnosed with bipolar disorder, and now, with all his other issues his mom might die...... We had the "big talk" the other night, "Mom, are you going to die?" I couldn't give him the BS of "yes, we will all die soon", the whole thing was so heart breaking. I am truly blessed that we moved back to Ohio from California 4 years ago and am surrounded by family, my sister is his guardian and lives right down the street. But as he said, "Mom, I don't want Aunt Peggy, I want you!"
Anyway, I didn't mean to go on and on like this, I have found the last few days that I have become very weepy, mostly when I think of my son, or the wonderful things people have done for me. Last night we had a ladies only birthday party at a winetasting, and I boohooed every time I opened a present, of course it didn't help that people were giving me stuff like musical snow globes engraved with "Angel of Hope" or that 30 people are coming over tomorrow to put up a fence in my yard so I don't have to worry about walking my dogs when they need to go out.
Again, my apologies for rambling, and I am so glad to have found this forum!