Dear Cindy, Just a few thoughts..... Do you live in an area where spraying of pesticides has been done, or near any big chemical manufactoring plant, been surrounded by second hand smoking, Do you have a basement that may need to be tested for radon gases, do you have city or private well and had it checked for harmful mineral concentrates ? Just thinking of something that could be closely related and focused in on for treatment. I just have not heard of a precious 3 year old with CC before. I hope they based their DX on a biopsy and not just scans. One last thing is did she have any medical problems at birth or shortly after and recieved any particular medicines for treatments or any food group or drink that has always been her favorite ? I'm sorry Cindy for rambling, just questions and things I would be thinking of if it was I and hopefully the doctors. Cindy , I am praying hard for a false or misdiagnoses of your little girl. There has got to be a positive out come! Pray, get second opinion, advocate, ask alot of questions. Again I apologize for being so direct and out spoken, but this CC has been a personal battle of mine for a long time and when I heard this, it about tore my heart out. You tell the doctors you have prayed to God to give them the miracle wisdom and knowledge to help your little one.
God Bless and Prayers of support headed your way!!! Faith and Hope go hand in hand.
P.S. Cindy I mentioned all the above as through my research back through my life I have been exposed to all plus more during my military career.
Take it to the Limit,One More Time! (Eagles)