Topic: Experiences with Sorafenib?
My name is Hans. I am 33 years old and was diagnosed with stage 4 CC on 12/12/05. My primary tumor is in the right lobe of my liver (quite large ~ 6cm x 8cm) with periodontal (sp?) metastasis in my abdomanal wall. My wife and I were able to consult oncologists at Stanford, UCSF and Swedish (in Seattle) regarding treatment options and decided to enroll in the Phase II trial for Sorafenib via Swedish here in Seattle.
I started treatment 12/28 (oral pills 2x per day) and after two weeks had to stop due to liver enzyme levels...after 5 days we were cleared to restart on a lower dosage. Wondering if anyone else has experience with Sorafenib (aka Nexavar as marketed by Bayer for renal cancer). I've had a lot of aches and pains (pretty intense pain with the restart of treatment) and believe these are attributible to the drug buildup. Would love to trade notes if anyone else has info to share.
PS - Thanks for developing this website....it is such a great resource!!!