Topic: CA19-9 , what does it all mean?
I have Stage IV Cholangiocarcinoma, already completely invaded my liver (think pate) and lymph nodes, unresectable, blah blah blah. But I am still unclear about the meaning of tumor markers. geez, and here I am a nurse. My CA19-9 when I was diagnosed was (drumroll please) 729, yes, seven HUNDRED twenty nine. The MDs were pretty impressed. I just got the results back after 3 weeks of chemo and again they were impressed, happily so, because it had gone down to 376. But what exactly does that mean? does the decrease mean that the tumors are slowing their rate of growth? While I am happy at the result, I don't just like to go on a number. Shoot, my LFT's are back to normal, but I still have cancer, ha. And I still have my terrible sense of humor