Topic: our experience at MD Anderson cancer center in Houson (from Seattle)
Just to re cap, my husband Rick has cc, metal stent in March when diagnosed which brought em back to the living ! He also has Bob, the 15 cm tumor on the left lobe of the liver with a couple buddies now, lesions. Its been a big no on every therapy and procedure, too big for ressection, tace, embolization etc. He did chemo but the oxy gave him such bad neuropathy. He chose quality. We have been cramming alot of life in the last few months. I can see him slipping here and there, but glad he still feels good. The tumor is so big it is hard to get stats on how others have done. .....anyway,
We went last week to the clinic, what a huge place. You could put U of Wa in the corner and loose it fast. Our choices were only clinical trials, (we figured that) one with combined chemo, and the other Herceptin (showing great promise with breast cancer but little with much else, and very hard on the heart.) They also said they would only treat there,(since it is their trial) making it hard to fly from Seattle each 3 week treatment for the Herceptin. Since nothing sounds promising, we did fly home as soon as all the appointments were done. HIs case was presented at the tumor board that evening. The doctor never did call when the board was finished, the nurse called 2 days later (today) so we are trying to consult over the phone with the doctor.
We are waiting to find out how the CTs look now, what changes Bob has made in the last 2 months, if any.
The doctor here in Tacoma wants Rick to try Tarceva, wow spendy stuff . You must have to work your way up to the good stuff which is expensive and the insurance companys of course frown on that ! In a bit of research yesturday I found Tarceva to be a fairly good chemo on the body , rashes being the cheif complaint, working well on some and not at all on others. My findings have been this is such a rare cancer they do appy therapies from other adenocarcinomas (glandular) such as pancreatic because they are common in cellular structure.
It is hard for a layman to sort out all the clinical terminology but it helps to know all we can when we have to fight so hard and there are so many existing opinions. Sharing is great, please let me know any tidbit of info if you have any input. Thanks Robyn