Topic: possible ressection of HUGE liver tumor hope or ???
My husband was diagnosed with cc in Jan. Since then we have been on the cancer roller coaster somewhere between hope and despair most of the time. He did chemo, knowing it does not have good numbers with Cholangiocarcinoma. Tumor too big for radiation at 15 cm. The thing is huge, we call him Bob. The oncologist sent him home basically saying enjoy til you are symptomatic. So he feels great, now with no chemo !!! We went to the University of Wa. and basically got the same news, just palliative treatment at best. Then the doc called him afternoon of the 4th (didnt know they worked holiday) and said he had been studying his scans and thot ressection may be possible and wanted to submit him to the board of surgeons. They called and scheduled an appt to see him on Tues.
It has boiled down to all or nothing. Very scary but if he is rejected then we feel we have lost everything. To make matters worse he is not taking advantage of every moment of every day, instead is mad, bitter, cant blame him.
I have alot of questions, maybe more by Tues if it looks like a go. Even if they get Bob removed, what about the bile ducts themselves? If the cancer originates from that, then he cannot be cancer free....and chemo still doesnt have much effect? I m wondering if the surjery is successful, what does that mean for months or years of quality life. How bad is the recovery, how risky, etc. And even questions on nutrition since the liver would be regenerating. I know I should wait until we see them on Tues but I am not one to wait well, and education is power, or at least emotionally helpful. Are there any people out there who have had a large tumor ressected and if so what were their experiences??
Any info is helpful as we are all in this together it seems. thanks robyn