Topic: My Experience
I was diagnosed with Cholangiocarcinoma in September of 2005. I was 46 at the time but had my 47th birthday on December 30th, 2005. I had been going to the Mayo Clinic in Rochester, MN for the last twenty six years for Ulcerative Colitis. This turned out to be a blessing because my doctor caught my present cancer during my yearly exam. He said it my have been a year or so before I would have noticed any symtoms from the tumor in my bile duct. The doctors found PSC of the bile ducts whice is probably associated with the many years of having colitis. I have had three weeks of radiation along with chemo. This was followed by brachytherapy (internal radiation to the cancer site) and a staging surgery to determine if the cancer was contained in the duct area or if it had spread to other areas. The results of the surgery were what we had been praying for the cancer is contained to the upper duct area. With these test results I am now eligible for a liver transplant. While waiting for a liver I must take chemo (Xeloda) two weeks on, one week off, this is taken by pill so it is much easier tham by IV. I go back Feb. 7th for a CT scan and other test to make sure the chemo is keeping the cancer in check. I thank God my doctor caught this cancer early or a transplant would not even be an option.
Thanks for starting this web site and I hope things are going well for you!