They were able to get clean margins and I had no lymph node involvement in the Whipple surgery (stage 2a) so chemo was adjuvant and totally my call to do or not do. I figured I might regret not doing it and I was told that Gemzar was well tolerated. I did 1x a week for 3 weeks and then 1 week off for 6 months. Just finished July 16th.
I didn't get a port until half way thru when my veins were going away. I can only get pricks and pressures on my right side (I had breast cancer and had lymph nodes removed from my left side). I am getting the port out on Sept 22nd and I can't wait! WIsh I had gotten the port sooner tho, cause my veins are pretty beat and NO I will not miss weekly blood draws!!
I see my surgeon for follow ups and he is the one who put in and will remove my port. My oncologist is the person following me mostly, however, I still stay in touch with a very caring GI doctor that first diagnosed me and my internist is wonderful as well.
I know what you mean about processing what has happened for the past 10 months, it's a very ugly blur right now. Never thought I would be done with it and hopefully we are both done with it!
I went on a cruise 3 weeks after chemo was done with my family and extended family and it was the best decision I made throughout my treatment. It was relaxing and detaching and the only time I thought about CC was when I undressed and saw my scar (which is actually fading quite nicely) and my port.
I am also loving life. This is my third separate cancer (breast, thyroid, and CC) and I have had enough thank you.
If you are on facebook, go ahead and "friend me"... it's Randi Barrell (I am the only one)
Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).
My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.