Topic: Intro & Questions
What we know at this time : The doctors will not confirm it is CC until after they have their team meeting this Friday, but unoffically we were told that is the the dx to expect. His cancer is inside the liver only. We have been told my husband's cancer is inoperable as it is on both sides of the liver and it is too close to vein or artery (I forgot which) and it is rather larger (on right posterior lobe). He also has multiple lesions which also factors in. They pushed us towards SIRT (Selective Internal Radiation Therapy) even before their official meeting.... as they believe it is our best option at this time.
We were not given a stage but given what I have read I think we are at IIIa. Doing some reading I'm guessing it is ICC as it is inside the liver only.
About my husband: He is stubborn, strong-willed and extremely active 69 yo. His only signs were pain in shoulder and exhaustion. No jaundice. He is still working, still active and hasn't lost weight, but has been suffering the past 3 weeks with very discomforting feelings of fullness, burping, nausea. We are having difficulty finding foods that he can eat without feeling bad. Even protein shakes seemed to bother him.
What I'm hoping for: The docs spend about 5 minutes downloading info to us at a time. We have been sped through this process and I'd like to know what we should be asking, any helpful tips on dealing with issues (like his struggle with food), and suggestions from those that have been here before. I feel like we've just gone along with the docs... ok pass check point b, go to c... take more test... and we still are in the wave of not understanding, disbelief and trying to come to understand. It is finally starting to sink and I'm ready to begin the fight with my husband now. I'm hoping the posters here will help us in this journey so we can fight a better fight.
Thanks, Lisa wife to Bill