Re: My Husband and Cholangiocarcinoma - Part 2
Well, Tom was able to have his Chemo yesterday, so that is the good news. The bad news is that he is down to 111 pounds so he's had about a 7 pound weight loss. His Onc is very concerned about his weight, as I am. She told him that he HAS to eat.
No matter what I suggest, he says 'uck, I can't eat that" - so I finally said, "If you don't start eating you won't be here for Thanksgiving, so quit making plans!" He is 63 years old and I can't "make" him eat (but I still try) and I don't know what else I can do! (Can you hear the frustration in my voice?)
Some days it is just so frustrating living with CC that I just want to scream at the injustice of it all. I just want to go back to my life before CC (but know that it would mean that Tom is gone then) so I really don't want that!
So here's the deal, I need some suggestion on what other people with CC who are on IV Chemo (Gemzar and Cisplatin) can eat and what they can tolerate. On the UP side, the doctor has prescribed something that will increase his appetite but the side effect is blood clots and we have to watch for swelling in only one side of his body can it can mean a blood clot, go figure eh?
I told him he should just start smoking some illegal substances cause rumor has it that will increase his appetite. He says that he doesn't want to do that cause it will show up in his blood work. To which I say SO? What are they going to do to you? Throw you in prison?
I guess I will just have to continue prodding him along and trying to get some food into him so he doesn't continue to lose weight. Looks like I have some arm twisting to do! Anyone wanna come help hold him down while I force feed him?
I will KEEP KICKIN' THAT cancer if I have to insert a feeding tube....hummm that's a thought....he didn't like the 'tube' after his kidney stone, I think I will go discuss a feeding tube with him, maybe that will convince him to start eating cause he HATES tubes!
Go with God,