Topic: Perhaps a way to help us "Stand up and be Noticed".
Last Saturday night @ about 11:30 pm ( pacific time), I logged on to this site.
And what do you think I noticed ? There were 65 non-members also on this site.
I couldn't believe that there were 65 ! So, 10 minutes later I rechecked the number--and there was then 72 non-members reading posts ! 72 people !!! I couldn't believe it !
It seems to me that if the Cholangiocarcinoma Foundation Website representing such a rare and "orphaned" cancer as ours had 2 or 3 thousand members, then perhaps we wouldn't be considered so obscure and perhaps researchers and the medical field would take notice of us.
So..............I'm wondering what can we do to get these people to join/register as members ?
Have a notice/banner open up when people come to the site --asking them to sign up--explaining that the more members we have, the more noticed we will be ?
What do you think ?