Tom goes in for another tube exchange on Monday the 31st of January. It should be fairly routine.
Slightly funny story to share. On 1/6/11 his PCP gave him a script for Morphine, 60 tabs. Every 4 hours. (which is about a 15 day supply and we were at day 22)
Since his medications had not yet come from the VA, his oncologist gave him another script for 60 tabs since he only had two left.
He dropped it off to get it filled and the pharmacy said it could not be filled until the 19th of Feb.
When I called them to find out why, they said the insurance said it was a refill too soon. We figured out that the VA had most likely FINALLY refilled his morphine on 1/27/11. (It was ordered 5 weeks ago, but someone at the VA fumbled that one and it wasn't until after Tom called the VA last week Monday questioning as to why it had not yet arrived, then they checked on it and his doc at the VA finally got it ordered and they were putting a 'rush' on it)
Well, I knew that his morphine from the VA would not get here at least until Tuesday, so I asked the pharmacy if we could just buy them and not run them through the insurance, she said she'd have to check with our insurance to ensure that it was the VA that had filled them. It was the VA Mail Order, so the pharmacy called back and said they could fill them under self pay and it would be $22.79. Since he can't go for 4 - 5 days without his pain medication I told her we would be right down to pick them up.
I realize it's a controlled drug, and they need to 'control' it so it's not abused....but for heavens sake the man has cancer and so what, the insurance would deny him his pain medication??? Whatever! So there is a way around it, just don't run it through your insurance and pay for it yourself!!! Something to keep in mind if you ever encounter something similiar.
In general Tom is still feeling pretty good, he had blood work yesterday and his bilirubin is at 6.7 - so that is holding pretty steady. His Alk Phosphate is elevated again up to 1258, (it had been down to 958) so I'm a bit concerned about that...and his amomnia levels are high again, so now he has to take a lovely cocktail to make him go to the bathroom. The only way to get rid of high amomnia levels is to poop it out I guess! You can imagine that he is just thrilled about that!
He has the tube exchange on Monday, a CTScan on Friday and goes back to the Onc next Monday to get the results....then they will be making a decision on Chemo. And believe it or not of all the people going to Aurora BayCare Vince Lombardi Cancer Center here in Green Bay, there are only TWO people who have ports installed for chemo! I found that very hard to believe!
And in three days, we start the 15th month of life, so when your doctor tries to put a timeframe on when your life will end, don't accept it! Tom is a great inspiration and we never gave up! If we would have listened to that oncologist I believe that Tom would have passed on within that 6 month time frame. Instead we pushed for other opinoins and found out that there were things that could be done, and he is living proof that Dr. Sing was WRONG! But is is scary that some people put so much stock in what their doctor tells them that many may just give up and do nothing and then yes, they may pass on as soon as their doctor predicts!
Go with God and KEEP KICKIN' THAT cancer.