Re: Article on Hospice by Atul Gawande
Tommy do not fear, you will be in charge. Suggestion: You should ask Hospice to explain to Judy why pain meds must be taken on a timely basis. If the pain is allowed to get out of hand by not being on a regiment, it is harder to get the pain under control. This happened to Teddy. Once he understood their explanation he was so much better. OOPS second suggestion: Have you and Judy sat down and talked frankly about who is going to make decisions down the road? I strongly suggest it. Let her know she can trust you with the guidance of Hospice to make her decisions and maybe when she says she does, that will give you more confidence about it all. Part of our role as care giver and advocate is to step up and make the decisions along with our loved one for as long as we can then we can quietly slip into the solo decision maker when needed. Best wishes.