Topic: Finding Cholangiocarcinoma specialist in New Jersey/New York
My mom got diagnosed with cholangiocarcinoma recently. Although they could not find a tumor anywhere besides lesions on the liver the pathology "favored" the bile duct. She went through a CT scan, MRI, PET scan, EUS... the works. Nothing found anywhere.... The 1st Cancer Center thought it was lung but Sloan Kettering disagreed and said bile duct. With two centers disagreeing, I think I want to get a 3rd opinion. The doc at Sloan sound knowledgeable but is basically following the standard chemo of Gemzar/Cisplatin. He said liver resection/transplant is not an option and said whenever the liver is impacted it's in the blood and it will come back. After reading some posts, it appears that some people do in fact get surgery done on the liver so I'm wondering why he's just against it? And is the surgery even a better option than chemo?
So to my question, has anyone had good experience with an oncologist for cholangio in the NJ/NY area?