Treatment Centers/Physicians (Page 4 of 7)

"And, what better testimony is there than that coming from a patient."

That is very true Marion, and has given me food for thought - maybe in time, we can start a sub section within AMMF's website where people can leave their recommendations ...

Helen x

I would like to provide the name of a brilliant & brave surgeon - Dr. Tomoaki Kato.  He is affiliated with Colombia University in New York, NY.  Dr. Kato is a pioneer of multi-organ transplants, as well as ex vivo surgery (outside the body).  I am honored to say that I have had the pleasure of being one of Dr. Kato's ex vivo patients.  I was diagnosed with cholangiocarcinoma & after failing chemo & being told by many physicians that my tumor was inoperable & there wasn't much hope, Dr. Kato removed my tumor in its entirety.  Four months later, I am alive & well.  Please research Dr. Kato & contact him if you've been told there is no hope.  He is my hero & I hope will become yours.  Best wishes to all.  My prayers are with every one of you!

LOVE Dr Christopher Siegel, University Hospitals, Cleveland, OH.  When the Cleveland Clinic expert recommended my brother seek hospice a coule of years ago, Dr. Siegel performed a very successful surgery and my brother was considered cancer-free up til recently.  Very easy to speak with and understand, tops in his field.

For the greater part of 2010 I was treated by the physician staff of Barnes-Jewish Hospital/Washington University Medical Center of St. Louis, MO.  I've changed to another hospital in St. Louis for further treatment at this time.

My main treating physicians at Barnes were:

Dr. David Linehan, whom I refer to as the "happy cutter", an hepato-biliary surgeon of excellent reputation and  highly experienced at liver surgery.  He twice reviewed me for possible liver resection but unfortunately both times he found that the IHCC tumor mass had infiltrated too far into the liver vasculature to permit a likely outcome of surgical success--if I understand him correctly.  The reason I refer to him as the "happy cutter" is that he seemed to me to be almost enthusiastically happy when surgery seemed a likely possibility, but spoke to me very little and much less joyously once surgery was ruled out.  He seems to truly enjoy his surgical work!  Can't say enough good about him, except I wish he could have done the resection.

Dr. Benjamin Tan, whose specailities include medical oncology and hematology.  He oversaw the chemotherapy administered to me this year, and the outcome was reported as quite successful, having shrunk the "huge" single tumor by about one-half in size from 10+ cm to about 5+ cm .over the course of treatment in spring, summer and fall of 2010.  In all honesty, his course of treatment has led me to state that Barnes has the best scientific-based (AMA and FDA-approved science, I might add, for better and for worse) presently available  for cholangiocarcinoma in the St. Louis area.  My experience with Dr. Tan would lead me to agree with another reporting here that Dr. Tan seems somewhat conservative in his approach to treatment.
  I have also consulted with another Barnes phycician of exceptionally high repute, who said to me "Unfortunately, we have not been very successful in our  consertavive approach to treating Cholangioncarcinoma, except for surgical resection where possible.  Therefore, you have little to lose by pursuing alternative treatment methods."  This means that in the understanding of some of the best minds at Barnes, they are applying treatments which are unlikely to be completely successful, and yet by adhering to conservative methods, they are closing their minds to alternative methods which might work.
    Dr. Tan has repeatedly told me that no patient suffering from cholangiocarcinoma and being treated by Barnes has survived more than four years after the date of the original CC diagnosis--unless the patient undergoes a successful surgical resection.    All that being said, Dr. Tan is, as yet, the only physician with whom I have encountered a personality conflict severe enough to require me to seek treatment elsewhere.  I am now being treated with chemotherapy by  a medical oncologist at another local St. Louis area hospital.

Dr. Robert Myerson, Professor of Radiation Oncology.  An excellent and persuasive communicator, with a great knowledge of radiology, cancer, and with the patience required to answer many of my questions about radioembolization and stereotactic body radiation therapy.  He and his associates designed and administered the five SBRT treatments in a clinical trial during August and September 2010.  Follow-up is to be scheduled.

DR. MYRON SCHWARTZ-LIVER SURGEON
                                            5 east 98th st-mount sinai hospital-12th floor
                                               new york, new york
                                            phone number 1-212-241-2891
                                     
                                         DR.MAX SUNG -ONCOLOGY MEDICINE
                                             1 gustave l. levy place
                                                new york, new york
                                             phone number- 1-212-241-7902
                                       
                                       DR. JOSEF MACHAC-DIRECTOR, NUCLEAR MEDICINE
                                              one gustave l. levy place, box 1141
                                                      new york, new york
                                                    phone number- 1-212-241-7888
                                     
                                         DR. JOSHUA WEINTRAUB- RADIOLOGY
                                              one gustave l.levy place
                                                  new york, new york
                                              phine number-1-212-241-4888

all of these doctors are under one roof and are KNOWLEDGEABLEof this cancer... i cannot say enough good things about the hospital or its doctors......ron and lucille

the above link may not work ,here is another.

http://cancer.osu.edu/viewer/press/Page … ewsid=4770

  I want to let people know that the Ohio state cancer research does provide some interesting research on bile duct cancer.
this web-site will let you to a research and clinical trial about  a drug called
AZD 6244 (Selumetinib) ,I belive  it is still in phase 2.
other research clinial trials related to bile duct cancer are :
Protocol OSU-09083;OSU-09092:OSU-09067 and SWOG-50809

A big thank you to all for establishing this list. It could not have happened without you. This link has been accessed by more than seven thousand times.   
Can't thank you enough for you kindness.
Love and Hugs,
Marion

One more big thanks to all for establishing this list.  It has been accessed in excess of eight thousand times. 
Love
Marion

Thanks Randi.

Hi all,
I thought to revive this thread once again.  Thanks for entering your information.
All my best,
Marion

Dear Pryianka, welcome to our family. First of all it is good news that your Mother can have the surgery. If you go to the top of the page and put Dr. Fong's name in our search engine I have a feeling it will come up in older posts. As soon as our members start waking up today, I know that you will get many more posts back with lots of suggestions. In the meantime I am sening my best wishes to your Mother and please keep us posted.

Pryinka...Hopefully someone can come along and speak to you about Dr. Emond, as I don't have any information.  But, I do know of Dr. Fong.  He has seen and operated on numerous CC patients and he is highly regarded among his peers.
All my best wishes,
Marion