Topic: mets to lung and lymph nodes

this week has not been good.  My Dad's DT scan (only 5 months post resection) is showing enlarged lymph nodes and nodules in 1 of the lungs.  He is going to start chemo within the next couple of weeks, he has been offered gemcitabine and carboplatin.  (see my posting under chemo for more info).  Would really appreciate it if anybody has similar experience of mets post resection and could share their experiences.

Also my Dad has pain and discomfort in his back and abdominal pain is getting worse, the offending lymph nodes are near the kidney so this accounts for the back pain.  any experiences/ techniques that have helped?

jules

Re: mets to lung and lymph nodes

Jules,

My father-in-law has cholangio with metasis to both lungs. Gemzar with Xeloda knocked his tumor markers down and he is doing well. He is now taking Gemzar and tarceva together and these are also keeping the cancer at bay. He was diagnosed with unresectable intra-hepatic cholangiocarcinoma with metastasis to both lungs on 1/3/05 and is still hanging in there with a possitive attitude which is helpfull. I hope the info helps but remember not all people react the same way to the chemo.

                                                                                           God Bless,

                                                                                                  TFORD

Re: mets to lung and lymph nodes

tford

thankyou for sharing your experience, that is great to hear about your father in law, I have seen many examples where a positive attitude helps.  Did your father in law have any side effects from the xeloda?

thanks, jules

Re: mets to lung and lymph nodes

Hello Jules,

              My F-IN-Law experienced mild hand-foot syndrome along with mild diarhea from the Xeloda but the side effects weren't enough to keep him down. The Tarceva however is really knocking his energy level down , he has to keep a watchfull  eye on his blood pressure from dipping to low along with stomach pain that the onocologist says is not the cancer spreading, also he experiences a very dry mouth at which he is taking a drug to produce saliva which makes him mad because he drools. I hope this helps your father and you as a care-giver make life easier in determining the route of which chemo to take. My F-IN-LAW is scheduled for a scan on 9/11/06 to see if the Tarceva is doing the job and I will keep you posted.


                                                                                          God Bless,

                                                                                                  TFORD

Re: mets to lung and lymph nodes

Jules-

I also sent you a reply about Xeloda (capecitabine) which if you go to the top of this page and click on  "Experiences" just before the phrase "Mets to lungs and lymph nodes" you'll find.

I would ditto the above on TFord's comments on Xeloda.  The diarrhea has been pretty mild and Immodium helps.  Hand-foot has been more of an issue, but if you're fathter isn't on his feet alot and he uses the "bag balm", it's not too much of a problem either.  The Xeloda seems to really be working for me right now.

Check out my other post to you.   Also, last night I found at clinicaltrials.gov that there is an Avastin/Tarceva trial in Denmark that just opened.  I have already been approved for Avastin and could probably get Tarceva in the US without any problem.  I am still interested in the AZD2171 trials in England if you have any contact info on those.

Thinking of you and your father and sending best wishes-
Caroline Stoufer