Topic: Odd Presentation of CC
I'm brand new to this site. My mom was just diagnosed with cancer of the bile duct which was first suspected from some elevated liver enzymes. A CT showed multiple low density lesions "too many to count" throughout her entire liver. PET scan showed no evidence of cancer outside of the bile duct or liver.We were told by her oncologist that it was inoperable and will start her on Gemzar and cisplatin. I've been reading many messages throughout this website and havn't seen anyone else describe this kind of presentation. Her oncologist called it "odd".
Anyhow, to say the least this has been very stressful, devastating and confusing. We were hopeful when we heard there was no cancer outside the liver because I'd heard this ruled you out for a transplant, however, we were turned down by Mayo MN. The surgeon there (Dr Gores) said she was not a candidate for liver transplant because the cancer was attacking so much of the liver that "it would just grow back". I'm confused and have yet to have someone explain it to me. If the diseased liver was taken out why should it matter how diseased it is??
My mom is only 49 and none of us are willing to accept chemo as her only option. We want surgery! We want a better outcome!
Can anyone help me understand this or give me some suggestions? Does anyone have experience/success with cc presenting this way?
Thanks so Much.