Topic: My husband went through the Mayo transplant protocol...
And was successfully transplanted on Feb. 24 in Jacksonville, FL. He's doing fantastic so far. Liver numbers are trending down and most are in the normal range already. You'd never know that he had major surgery two weeks ago, other than the awesome "battle wound" on his abdomen. I tell him he's been through a war for sure.
And the best news of all--the pathology report on his old liver was good. The tumor was practically gone due to the aggressive treatment protocol of radiation and chemo, and no cancer was found anywhere else outside of the bile ducts.
We relocated to Jacksonville in July 2010 to go through the transplant evaluation and then chemo and radiation. He was added to the transplant waiting list on Oct. 12 after a successful exploratory staging surgery. The last 8 months haven't been easy, but most definitely worth all the ups and downs. We're looking forward to going home to NC in a few weeks, and spending the rest of our lives doing whatever we can to promote organ donation, cholangiocarcinoma, and PSC awareness. It's the least we can do to honor the donor and his or her family, who gave us the most incredible gift so that my husband could live.